MétaCan
Menu
Back to cohort
Record W4417134421 · doi:10.1073/pnas.2518445122

Genetics of prelingual isolated deafness and Usher syndrome in the Maghreb and Jordan: Harnessing the potential of homozygosity

2025· article· en· W4417134421 on OpenAlexaff
Zied Riahi, Sophie Boucher, Samia Abdi, Fabienne Wong Jun Tai, Amrit Singh‐Estivalet, Asadollah Aghaie, Magali Niasme-Grare, Jean‐Pierre Hardelin, Asma Behlouli, Malika Dahmani, Sonia Talbi, Yosra Bouyacoub, Rahma Mkaouar, Chérine Charfeddine, Ghita Amalou, Amina Bakhchane, Amale Bousfiha, Sara Salime, Soukaina Elrharchi, Malak Salame, Mouna Hadrami, Ely Cheikh Boussaty, Hicham Charoute, Mustapha Detsouli, Khalid Snoussi, Hassan Rouba, Hala El Hachmi, Fatimetou Veten, Ghlana Meiloud, J. Marrakchi, Rim Zaïnine, Houda Chahed, G. Besbes, Médiha Trabelsi, Ridha Mrad, Ichraf Kraoua, Sofiane Ouhab, Djamel Djennaoui, Farid Boudjenah, Éliane Chouery, Mirna Mustapha, Ahmed Houmeida, Abdelhamid Barakat, Fatima Ammar Khodja, Mohamed Makrelouf, Akila Zenati, N. Beltaïef, Sonia Abdelhak, Crystel Bonnet

Bibliographic record

VenueProceedings of the National Academy of Sciences · 2025
Typearticle
Languageen
FieldNeuroscience
TopicHearing, Cochlea, Tinnitus, Genetics
Canadian institutionsChild, Adolescent and Family Mental Health
FundersAgence Nationale de la RechercheFondation Pour l'Audition
KeywordsUsher syndromeConsanguinityMissense mutationGenetic counselingHearing lossDisease gene identificationSensorineural hearing lossHereditary DiseasesMutation

Abstract

fetched live from OpenAlex

The molecular genetic diagnosis of prelingual sensorineural hearing impairment (HI) is essential for genetic counseling and patient management. Effective diagnosis requires a knowledge of the genetic architecture of HI, which is often lacking. We established a cohort of 450 unrelated patients with familial (at least two affected relatives) severe-to-profound bilateral prelingual HI in five countries with high consanguinity rates: Tunisia, Jordan, Algeria, Morocco, and Mauritania (the TJAMM cohort). Recessive and dominant inheritance were observed in 92% and 8% of cases, respectively; 14% were syndromic. Genome analysis detected 211 different mutations (36% not reported before) in 49 deafness genes, and fully resolved 90% of cases of autosomal recessive isolated deafness (DFNB forms), 89% of the mutations being homozygous. The deafness genes involved were similar in different countries, but their mutations, except a few in GJB2 and LRTOMT , differed considerably, suggesting an overrepresentation of private mutations. Biallelic missense mutations in MYO7A , CDH23 , PCDH15 , USH1C cause either DFNB forms or Usher syndrome type 1 (USH1) ( USH1/DFNB genes). Such mutations were overrepresented (13% of patients), highlighting the importance of distinguishing between these two mutation classes. We hypothesized that current difficulties might stem from the misclassification of certain mutations. By studying the 65 USH1/DFNB missense mutations reported to cause DFNB in the homozygous state, we identified some that, when associated with a loss-of-function mutation, resulted in USH1, a characteristic pattern of some recessive hypomorphic mutations. This reappraised classification of USH1/DFNB mutations has the potential to improve molecular diagnosis and patient management significantly.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.000
metaresearch head score (Gemma)0.001
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.002
Threshold uncertainty score0.004

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0000.001
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0010.001
Science and technology studies0.0000.000
Scholarly communication0.0000.000
Open science0.0000.001
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0010.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.036
GPT teacher head0.309
Teacher spread0.273 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designObservational
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations1
Published2025
Admission routes1
Has abstractyes

Explore more

Same venueProceedings of the National Academy of SciencesSame topicHearing, Cochlea, Tinnitus, GeneticsFrench-language works237,207