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Record W6902659375 · doi:10.6084/m9.figshare.c.7952980

Knowledge user perspectives on integrated knowledge translation (iKT) in health interventions research for people with multiple sclerosis: a qualitative descriptive study

2025· other· en· W6902659375 on OpenAlexaffabout

Bibliographic record

VenueFigshare · 2025
Typeother
Languageen
FieldHealth Professions
TopicMental Health and Patient Involvement
Canadian institutionsHolland Bloorview Kids Rehabilitation HospitalUniversity of TorontoUniversity of GuelphUniversity Health Network
Fundersnot available
KeywordsKnowledge translationPsychological interventionThematic analysisQualitative researchOperationalizationContext (archaeology)Descriptive researchRepresentativeness heuristic

Abstract

fetched live from OpenAlex

Abstract Background Integrated knowledge translation (iKT) represents an approach to optimizing health interventions research through active collaboration between researchers and knowledge users throughout the research process. To date, few studies have explored the process of engaging in iKT, particularly in the context of multiple sclerosis (MS) research. Building on a larger iKT-informed study exploring mindfulness-based interventions for people living with MS, this study explores the perspectives of iKT panellists and extended collaborators on the use of iKT in health research. Methods This qualitative descriptive study utilized one-on-one semi-structured interviews conducted using Zoom or Microsoft Teams. Interviews were 20–30 min in duration. An interview guide informed by the Ontario Brain Institute’s framework for patient engagement across the stages of research was used. Interviews were transcribed verbatim, coded, and analyzed using inductive thematic analysis. Results A total of eight iKT partners were interviewed, five were members of the iKT panel and three were extended collaborators. Five themes on the use of iKT in health interventions research on MS were identified: (1) defining iKT, (2) motivation and meaningful participation in iKT, (3) the importance of networking in iKT, (4) balancing multiple perspectives, and (5) barriers and facilitators to engaging in iKT. Within these themes, interviewees highlighted the need for further definition and operationalization of concepts. Discussion on the representativeness of iKT partners and recruitment of ‘hard to reach’ knowledge users was also salient. Conclusion The findings from this study provide useful considerations for other teams using an iKT approach. Future research directions include finding/maximizing meaningful ways for knowledge users to participate, exploring ways in which knowledge users could lead/co-lead (rather than consult on) research activities, and examining the potential role of an iKT facilitator.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.051
metaresearch head score (Gemma)0.065
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Qualitative · Consensus signal: Qualitative
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.051
Threshold uncertainty score0.270

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0510.065
Meta-epidemiology (narrow)0.0010.001
Meta-epidemiology (broad)0.0020.001
Bibliometrics0.0030.004
Science and technology studies0.0140.015
Scholarly communication0.0070.009
Open science0.0030.012
Research integrity0.0030.004
Insufficient payload (model declined to judge)0.0040.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.754
GPT teacher head0.586
Teacher spread0.168 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designQualitative
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations0
Published2025
Admission routes2
Has abstractyes

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