Preserving a sense of self: young people’s experiences living with food allergy
Bibliographic record
Abstract
Young people with food allergies live with the unpredictable risk of anaphylaxis, which creates a considerable burden including stigma, marginalization, and constant vigilance. We currently lack the knowledge to fully understand ideal management and health needs from the perspective of young people living with food allergy. The purpose of this study was to explore young people’s lived experience of food allergy and analyze its assigned meaning with the intent to inform allergy management and policy. Ten Canadian youth between the ages of 13 to 21 years old with a diagnosis of food-induced anaphylaxis participated in two semi-structured interviews, the first with a focus on lived experience through a phenomenological lens, and the second using photovoice. A focus group helped to provide feedback on early analysis and recommendations. This study used a novel approach in combining van Manen’s phenomenology of practice with photovoice to guide collection and analysis of the resulting data. Analysis used van Manen’s existentials to develop the following subsequent themes: the altered self, home is a safe place, in my shoes, living with possibilities, and the invisible barrier. The resultant overarching theme, preserving a sense of self, concerns how young people living with food allergies must create a sense of holistic safety to maintain their identities. This safety is necessary in the face of perceived limitations and threats experienced as a result of their food allergies. Findings from this study contribute new knowledge of young people’s experiences and assigned meaning when living with food allergy. This study provides new opportunities to expand future food allergy research, policy, education, and clinical practice concerning young people and their health needs.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.005 | 0.007 |
| Meta-epidemiology (narrow) | 0.001 | 0.001 |
| Meta-epidemiology (broad) | 0.001 | 0.001 |
| Bibliometrics | 0.001 | 0.001 |
| Science and technology studies | 0.011 | 0.012 |
| Scholarly communication | 0.006 | 0.004 |
| Open science | 0.001 | 0.006 |
| Research integrity | 0.002 | 0.003 |
| Insufficient payload (model declined to judge) | 0.001 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".