Adult Children Private Facebook Group
Bibliographic record
Abstract
An online forum for adult children of people with Parkinson’s allows peers living a shared experience to offer support, share tips and information, and be heard. Living optimally despite the complex and progressive symptoms of Parkinson disease requires a team effort with caregivers and family members playing both offense and defense positions. They alternate planning and preparing for the future with responding and adjusting to the constant demands and problems encountered every day. In nearly all aging populations, adult children at some point become heavily involved in screening treatments, interventions and support. This is particularly true with PD due to the length and degenerative nature of the disease. The Adult Children of People with Parkinson’s private Facebook group offers peers a safe, private space where they can share tips and information, offer support and inspiration, and be heard in a safe, private space. The group now grows at an average rate of 20 new members per week, engaging people from across the US, Canada and Europe. Using an UX model of design and the value proposition canvas, we created the page to address this population’s pain points based on information surfaced from conversations with hundreds adult children of people with PD. The private group addresses the needs of adult children, helping to educate them about the disease, treatments and interventions. The group also offers them an opportunity to build skill sets based on a better understanding of PD as well as how they can support their family member with Parkinson disease and the primary care partner. The group offers an important forum for discussion, learning, and building support. In addition to conversations among the adult children, PMD Alliance posts regular information about treatments, tools and assistive devices, medical professions that assist in navigating PD, and more.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
How this classification was reachedexpand
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.000 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.000 | 0.000 |
| Scholarly communication | 0.000 | 0.001 |
| Open science | 0.000 | 0.000 |
| Research integrity | 0.000 | 0.000 |
| Insufficient payload (model declined to judge) | 0.000 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one teacher head, not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".