Navigating the burden of caregiving: Transition journey of Black Canadian parents with preterm infants from NICU to home
Bibliographic record
Abstract
Introduction Transition from NICU to home is a critical period as many parents begin to take primary responsibility of caring for their preterm infant. But this period of transition impacted by the demands and stress of caring for a fragile infant, is often complicated by limited access to support and resources. These stressors impact parents’ mental wellbeing and responsiveness to infant needs. This study aimed to shed light on the unique journey of Black Canadian parents of preterm infants transitioning from NICU to home. Methods An exploratory qualitative design underpinned by principles of meaningful community engagement was used to explore the experiences of 40 Black Canadian parents of preterm infants. Focus group and interviews were conducted, and data were analyzed using thematic analysis. Findings The findings illuminated the transition journey of Black parents from NICU was shaped by physical, emotional, financial strain and mental health burden of caregiving in the face of inadequate follow-up care and support. Conclusion This study underscores the need for developing targeted programs and services to support and promote the wellbeing of Black Canadian parents after they transition home .
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.003 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.001 | 0.001 |
| Science and technology studies | 0.021 | 0.003 |
| Scholarly communication | 0.003 | 0.001 |
| Open science | 0.001 | 0.003 |
| Research integrity | 0.001 | 0.002 |
| Insufficient payload (model declined to judge) | 0.003 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".