Abstract P1-11-10: Young women with breast cancer: Needs and experiences
Notice bibliographique
Résumé
Abstract Background About 11% of all breast cancers in the United States are diagnosed in women younger than the age of 45. Young women with breast cancer (YWBC) may experience unique physical and psychosocial problems. Meeting the needs of these young women is often dependent on a patient’s oncology team. There is a lack of data about the experiences of YWBC in our region including whether their needs are met and which resources are available and offered to them. Objectives To explore the unique physical and psychosocial needs of YWBC in our region (Hamilton and Niagara) and to describe what information YWBC receive, and which decisions are made, regarding: fertility, breast reconstruction, mastectomy, sexuality and emotional support. Methods This study includes women 40 years of age or less who were diagnosed with invasive breast cancer within 12 months. Using a qualitative design, participants attended a 1 hour focus group or a 30 minute interview moderated by the research coordinator, JR. Recordings were transcribed verbatim, with anonymization of any identifying information. Fourteen participants (ages 30 to 40) were included. Co-PI (PR) and JR reviewed the transcripts, complied recurring categories, and discrepancies were resolved via consensus. Results Most participants underwent a timely work-up and diagnosis (64%) but some experienced a delay in diagnosis (37%) as they were seen as unlikely to have cancer due to age. A majority of the participants felt they were provided enough information for informed decisions about treatment. However, over one third of the women were not provided any information about social or community supports and a similar proportion also felt that fertility and sexuality issues were not adequately addressed. Over one third planned on having bilateral mastectomy and/or immediate reconstruction, regardless of physician recommendation. The most distressing aspects of the cancer experience included: telling children and parents about the diagnosis; waiting for test results; fear of recurrence; and re-starting life after breast cancer. Recurring Themes From YWBCRecurring ThemesFG1FG2FG3INT1INT2INT3INT4Initial DiagnosisTimely Diagnosis•• •• • • •••Delay in Diagnosis• •• • • Poorly Communicated• •• • TreatmentUndergoing B/L mastectomy•••• • Undergoing reconstruction•• •• • CommunicationWell informed about Rx plan• • •• • •• •• Not well-informed about Rx plan • ••••Well informed about fertility • Not well-informed about fertility ••• •Needs met re: sexuality • Needs unmet re: sexuality• • •Info provided re: supports• • • •••• Info not provided re: supports • • • • •Supports UtilizedSocial Worker • ••• Community Services• • •••••• None • • • • • FG=Focus Group; INT=Interview Conclusion YWBC feel that they are provided with adequate medical information for treatment decision-making. However there is a gap in supports for psychosocial, fertility, and sexuality-related needs. Interventions targeted to address these unmet needs should be evaluated. In the second phase of this study, we will create an instrument to further assess the needs of young women with breast cancer in our region. Citation Format: Punam Rana, Jonathan Sussman, Jenna Ratcliffe, Margaret Forbes, Mark Levine, Nicole Hodgson. Young women with breast cancer: Needs and experiences [abstract]. In: Proceedings of the Thirty-Seventh Annual CTRC-AACR San Antonio Breast Cancer Symposium: 2014 Dec 9-13; San Antonio, TX. Philadelphia (PA): AACR; Cancer Res 2015;75(9 Suppl):Abstract nr P1-11-10.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,002 | 0,004 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,000 | 0,001 |
| Études des sciences et des technologies | 0,006 | 0,002 |
| Communication savante | 0,003 | 0,003 |
| Science ouverte | 0,001 | 0,005 |
| Intégrité de la recherche | 0,001 | 0,002 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,008 | 0,001 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».