Incurable Invisible: Living with Advanced Disease in a Canadian Cancer Hospital
Notice bibliographique
Résumé
This thesis follows the lives of people who are diagnosed with a cancer that is unlikely to be cured. This means that even if patients receive one or multiple rounds of the standard treatments of chemotherapy, surgery and radiation, there is a high probability that they will still die from their disease. Incurable illness presents a particular problem due to a combination of cultural meanings and values, both within biomedicine and within society. Drawing on 17 months of ethnographic fieldwork conducted in one Canadian cancer hospital, working with patients with lung and gynaecological cancers, the dissertation answers the question: What is life like for patients with advanced cancer as they live with their disease, post-diagnosis? Although its focus is primarily on the patients, it also includes the experiences of doctors and nurses at the hospital, and patients’ family and friends.\nI explore some of the challenges and tensions produced from living with a diagnosis of advanced cancer. For example, patients are advised to ‘live in the moment,’ but this is a very challenging directive to follow as it is interlaced with the connotation that they are being entreated to do so because their futures are uncertain. Similarly, patients have to muster enough hope to be able to endure the emotionally and physically demanding treatments, but not so much hope that they believe that the treatments will actually cure them of their disease. These entreaties require them to straddle both the worlds of oncology and survivorship and the worlds of death, dying and palliative care, which my findings indicate is extremely difficult to withstand on a day-to-day basis. I argue that advanced cancer is a kind of ‘liminal’ space, an ambiguous territory that exists between the hope for a cure and the imminence of death. Patients’ ambiguous position is made even more challenging since contemporary cancer culture in North America tends to highlight only cancer survivors or people who have ‘lost their battles’ from cancer, rendering the struggles and experiences of patients who are living with advanced cancer but not currently dying from it, both culturally silent and invisible.
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Prédiction distillée sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Apprise à partir de 10 348 étiquettes directes de Codex et de 10 348 étiquettes directes de Gemma. Le mode candidate est l'union des têtes enseignantes seuillées; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont ni des étiquettes humaines ni des étiquettes directes de modèles de pointe.
Scores Codex et Gemma par catégorie
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,002 | 0,000 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,001 | 0,000 |
| Bibliométrie | 0,000 | 0,000 |
| Études des sciences et des technologies | 0,000 | 0,000 |
| Communication savante | 0,000 | 0,001 |
| Science ouverte | 0,000 | 0,000 |
| Intégrité de la recherche | 0,000 | 0,000 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,011 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule tête enseignante, pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».