A216 UC NARRATIVE CANADIAN DATA – COMPARING PATIENT AND PHYSICIAN PERSPECTIVES ON COMMUNICATION AND MANAGEMENT OF ULCERATIVE COLITIS
Notice bibliographique
Résumé
The Ulcerative Colitis (UC) Narrative Study was created to better understand the perspectives of patients (pts) and gastroenterologists (GIs) regarding issues surrounding UC and its management in 10 countries. Here, we present data from a cross-sectional survey of Canadian pts and GIs. Surveys were conducted online between Dec 2017 and Feb 2018. Pts (≥18 years) met the following criteria: diagnosis of UC, not had a colectomy, taken prescription (Rx) UC medication beyond 5-aminosalicylates (5-ASAs), and visited a GI/internist in the previous year. Eligible GI physicians were included if they saw ≥10 UC pts per month, if ≥10% of their UC pts were treated with a biologic, and if they did not practice in a long-term care facility. 80 GIs and 215 pts responded (pts’ mean age, 42.1 years; 51% male), and current Rx medications included biologics (37%), corticosteroids (34%), 5-ASAs (31%), and immunosuppressants (30%), with 8% of pts receiving no Rx medication. 63% of pts reported their UC being controlled with no/few symptoms, and GIs felt that UC was controlled in 67.8% of their pts on average. In the past year, 89% of all pts reported a flare and experienced a mean of 5.2 flares. The majority of pts (87%) were satisfied with the communication they had with their GI, and 69% had set goals for managing UC. Most pts (80%) were satisfied with their current medication, and GIs believed 77.6% of pts to be satisfied, on average. 67% of pts wished they had more medication choices. Approximately half of pts (52%) wished their GI had discussed all treatment options earlier so they had a better idea of their choice, while 78% of GIs wished they had more time for such discussions. Less than half (42%) of pts had interacted (relied on for information, reached out to, or were referred by their GI) with a pt organization. Only 66% of GIs discussed with their pts the information and support pt organizations can provide, despite 86% of GIs agreeing that pt organizations are important to the management of UC. Pts and GIs agreed on what is most important for UC management – being able to conduct daily activities, avoiding a colectomy and hospitalization. While 98% of GIs wished their pts would talk to them before stopping medications, 38% of pts hesitated to disclose non-adherence to their GI. Canadian pts have positive relationships with their GIs, but opportunities remain regarding understanding pt concerns, setting appropriate goals, and pt education and support, particularly at the time of diagnosis where pt organizations could be an important resource. Pfizer Inc
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,003 | 0,015 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,001 |
| Bibliométrie | 0,002 | 0,006 |
| Études des sciences et des technologies | 0,004 | 0,001 |
| Communication savante | 0,002 | 0,001 |
| Science ouverte | 0,001 | 0,002 |
| Intégrité de la recherche | 0,000 | 0,001 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,008 | 0,001 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».