S750 Defining Transition Success in Inflammatory Bowel Disease According to Patients, Parents, and Health Care Providers
Notice bibliographique
Résumé
Introduction: The incidence of childhood inflammatory bowel disease (IBD) diagnoses is increasing; therefore, more patients will transition from pediatric to adult care. Literature on IBD transition has focused mainly on transition readiness; transition success is often referenced but is rarely defined. The aim of this study is to describe transition success from the perspectives of patients, parents, and health care providers representative of these stakeholders. Methods: Virtual semi-structured interviews were conducted using interview guides; a separate guide was developed for each group. Interviews were transcribed verbatim and then analyzed concurrently with data collection by latent content analysis. Recruitment for each group in Western Canada continued until thematic saturation was achieved. This study used a naturalistic inquiry approach with methods of qualitative description. Results: Thematic saturation was achieved with a different number of participants for each group: 17 patients; 15 health care providers; and 13 parents. Among patients, 58.8% were female, median age at diagnosis was 15 (IQR: 3.5), 47% had Crohn’s, 47% reported ulcerative colitis, and one reported both. Among providers, 73.3% were female; 40% were IBD nurses in adult care, 6.7% were IBD nurses in pediatric care, 20% were pediatric gastroenterologists, and 33.3% were adult gastroenterologists. All parents were mothers of children with IBD. One transition success theme was common to all groups: independence in one’s care. characterized by the patient making and attending appointments, and asking questions, and having an awareness of their health. A theme that emerged in both patient and parent groups was the relationship with or trust in the adult care team, characterized predominantly as the patient being comfortable with their new care team. A theme common to provider and parent groups was disease management, characterized by medication adherence and reaching out as needed. Additional themes that emerged within specific groups are outlined in Figure 1. Conclusion: Health care providers, parents, and patients share the view that transition success requires independence in one’s care. Themes specific to one or two stakeholder groups include relationship with or trust in the adult care team, disease management, health outcomes, care stability, care team management, and general knowledge. A definition of transition success that reflects perspectives of all stakeholders can guide providers to help patients achieve success.Figure 1.: Percentage of affirmed practice beliefs.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,011 | 0,021 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,001 |
| Bibliométrie | 0,001 | 0,001 |
| Études des sciences et des technologies | 0,003 | 0,003 |
| Communication savante | 0,003 | 0,003 |
| Science ouverte | 0,001 | 0,005 |
| Intégrité de la recherche | 0,001 | 0,001 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,003 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».