S750 Defining Transition Success in Inflammatory Bowel Disease According to Patients, Parents, and Health Care Providers
Bibliographic record
Abstract
Introduction: The incidence of childhood inflammatory bowel disease (IBD) diagnoses is increasing; therefore, more patients will transition from pediatric to adult care. Literature on IBD transition has focused mainly on transition readiness; transition success is often referenced but is rarely defined. The aim of this study is to describe transition success from the perspectives of patients, parents, and health care providers representative of these stakeholders. Methods: Virtual semi-structured interviews were conducted using interview guides; a separate guide was developed for each group. Interviews were transcribed verbatim and then analyzed concurrently with data collection by latent content analysis. Recruitment for each group in Western Canada continued until thematic saturation was achieved. This study used a naturalistic inquiry approach with methods of qualitative description. Results: Thematic saturation was achieved with a different number of participants for each group: 17 patients; 15 health care providers; and 13 parents. Among patients, 58.8% were female, median age at diagnosis was 15 (IQR: 3.5), 47% had Crohn’s, 47% reported ulcerative colitis, and one reported both. Among providers, 73.3% were female; 40% were IBD nurses in adult care, 6.7% were IBD nurses in pediatric care, 20% were pediatric gastroenterologists, and 33.3% were adult gastroenterologists. All parents were mothers of children with IBD. One transition success theme was common to all groups: independence in one’s care. characterized by the patient making and attending appointments, and asking questions, and having an awareness of their health. A theme that emerged in both patient and parent groups was the relationship with or trust in the adult care team, characterized predominantly as the patient being comfortable with their new care team. A theme common to provider and parent groups was disease management, characterized by medication adherence and reaching out as needed. Additional themes that emerged within specific groups are outlined in Figure 1. Conclusion: Health care providers, parents, and patients share the view that transition success requires independence in one’s care. Themes specific to one or two stakeholder groups include relationship with or trust in the adult care team, disease management, health outcomes, care stability, care team management, and general knowledge. A definition of transition success that reflects perspectives of all stakeholders can guide providers to help patients achieve success.Figure 1.: Percentage of affirmed practice beliefs.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.011 | 0.021 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.001 |
| Bibliometrics | 0.001 | 0.001 |
| Science and technology studies | 0.003 | 0.003 |
| Scholarly communication | 0.003 | 0.003 |
| Open science | 0.001 | 0.005 |
| Research integrity | 0.001 | 0.001 |
| Insufficient payload (model declined to judge) | 0.003 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".