DO PARENTS AND PATIENTS WITH EARLY-ONSET SCOLIOSIS (EOS) SHARE THE SAME PERSPECTIVE ON HEALTH-RELATED QUALITY OF LIFE? A COMPARISON OF EOSQ-24 AND SRS-22 SCORES
Notice bibliographique
Résumé
EOSQ-24 is validated in EOS patients aged 0-18 years and SRS-22 is validated in idiopathic scoliosis patients ≥10 years. EOSQ-24 is completed by the parent and SRS-22 is completed by the patient. A prior study comparing patient-reported outcome measures completed by older pediatric patients and their parents showed a low level of agreement. The aims of this study were (1) compare EOSQ-24 and SRS-22 scores completed at the same timepoint, and (2) compare EOSQ-24 and SRS-22 scores completed at subsequent timepoints, in patients aged 5-18 years with idiopathic or congenital scoliosis without developmental delay. This was a multicenter retrospective study. We identified pairs of EOSQ-24 and SRS-22 completed on the same day or within 6 months. Some patients had multiple pairs of surveys over time. EOSQ-24 and SRS-22 questions were matched using previously published methodology and domain scores for Pain, Function, Mental Health, and Satisfaction were compared. Patients with a change in treatment between completed surveys were excluded. Pearson Correlation test was used to compare EOSQ-24 and SRS-22 domain scores, with r>0.7 indicating a strong relationship. Four hundred and eleven pairs of EOSQ-24 and SRS-22 questionnaires were completed on the same day by 228 patients (Table 1). A strong correlation was found only for the Pain domain (r=0.77). Function, Mental Health, and Satisfaction domains had positive but not strong correlations (r= 0.58, r=0.50, r=0.41, respectively). Sub-analysis based on age also showed a strong correlation only for Pain (Table 2). There were 134 pairs of surveys with SRS-22 completed within 6 months after an EOSQ-24 by 76 patients (Table 1). All domains demonstrated a positive but not strong correlation, with Pain showing the highest correlation (r=0.64). EOSQ-24 and SRS-22 had a strong correlation only for the Pain domain when completed at the same timepoint. EOSQ-24 and SRS-22 completed within six months lacked a strong correlation for all domains. Our findings suggest that parents and older children with EOS may not share the same perspective on their health. Self-reported questionnaires may be more appropriate instruments to assess HRQoL in older, developmentally neurotypical patients with EOS. Future studies should further investigate how to compare proxy measures and self-reported outcome measures, as children with EOS develop cognitively with age and transition from parent-reported to self-reported questionnaires. For any figures or tables, please contact the authors directly.
Récupéré en direct depuis OpenAlex et désinversé. Les résumés ne sont pas conservés dans cette base de données : les index inversés représentent 8,6 Go des 9,3 Go de texte de la base, et le serveur dispose de 13 Go libres.
Comment cette classification a été obtenuedéplier
Prédiction machine sur la base complète
Imitation des enseignantsNi prévalence calibrée, ni vérité terrain. Validation humaine à venir. Le volet Gemma est une étiquette directe du modèle pour chaque travail de la base, lue sur la notice réduite au titre. Le volet Codex est un classifieur appris des 10 348 étiquettes directes de Codex et calibré sur les taux pondérés de l'échantillon; les champs sans appui suffisant ne portent aucun appel Codex. Le mode candidate est l'union des deux volets; le consensus est leur intersection. Ces sorties portent le statut machine_predicted_unvalidated et ne sont pas des étiquettes humaines.
Scores du classifieur distillé par catégorie (deux têtes)
| Catégorie | Codex | Gemma |
|---|---|---|
| Métarecherche | 0,001 | 0,006 |
| Méta-épidémiologie (sens strict) | 0,000 | 0,000 |
| Méta-épidémiologie (sens large) | 0,000 | 0,000 |
| Bibliométrie | 0,001 | 0,001 |
| Études des sciences et des technologies | 0,001 | 0,000 |
| Communication savante | 0,001 | 0,001 |
| Science ouverte | 0,000 | 0,001 |
| Intégrité de la recherche | 0,000 | 0,000 |
| Charge utile insuffisante (le modèle a refusé de juger) | 0,002 | 0,000 |
Scores machine (provisoires)
Les deux têtes enseignantes du modèle étudiant, lues sur ce travail. Un score ordonne la base pour la relecture; il n'affirme jamais une catégorie, et le statut de validation accompagne chaque rangée tel quel.
Scores de référence d'un modèle non mature (critères de maturité non atteints, 7 itérations). Un score ordonne; il n'affirme jamais une catégorie.
score_only:v0-immature-baseline · tel quel depuis la passe de notation : score_only signifie que le nombre peut ordonner les travaux, et qu'aucune étiquette de catégorie n'en découleClassification
machine, non validéePrédiction automatique; un appel candidat d’une seule source (Gemma direct ou Codex distillé), pas un consensus.
Le détail, modèle par modèle et score par score, se trouve en fin de page sous « Comment cette classification a été obtenue ».