Managing Illness through Creative Engagement: Women, HIV, and the Stitches Doll Project
Bibliographic record
Abstract
The Stitches Doll Project is a community-based initiative that enables women and girls to express their feelings about living with HIV/AIDS through creating a doll that speaks for them. In a very personal and powerful way, women and girls are able to tell their stories both visually, through their dolls, and verbally/non-verbally, through their dolls’ monographs. The completed dolls become part of an online and traveling oral history exhibit. Based on an analysis of the dolls and their monographs, interviews with doll contributors and project coordinators, and archived Stitches materials, this paper explores the meaning making and identity work/repair articulated through textile creation and the cultural transmission of oral histories. Our analysis reveals four recurrent message themes: making sense of infection, the impact of HIV, the role of social support and connection, and educating others. These themes speak to the nature of the oral history the artists transmit via their dolls. As they design their contribution to the project at Stitches workshops, the healing benefits of creative engagement through textile artwork is made available to them. It is these two components of the project in combination that afford doll makers a unique opportunity to engage in a process of meaning making and identity work/repair. In the process they help advance public education efforts by challenging cultural beliefs regarding “the face of AIDS,” the experience of living with HIV/AIDS, and ultimately who is at risk for acquiring the virus and by poignantly calling attention to the variety of social factors (e.g., poverty, domestic violence, and sexual abuse and assault) that put women at risk for contracting HIV.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.011 | 0.009 |
| Meta-epidemiology (narrow) | 0.001 | 0.001 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.001 | 0.001 |
| Science and technology studies | 0.018 | 0.019 |
| Scholarly communication | 0.011 | 0.006 |
| Open science | 0.002 | 0.020 |
| Research integrity | 0.003 | 0.005 |
| Insufficient payload (model declined to judge) | 0.006 | 0.001 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".