DEVELOPMENT OF A WEB‐BASED SELF‐MANAGEMENT PROGRAM FOR TEENS WITH IBD AND THEIR PARENTS: THE MISSION IS REMISSION©
Bibliographic record
Abstract
Background: IBD adversely affects health-related quality of life (QOL) in children with IBD. Self-management interventions positively impact the QOL of patients in other chronic illnesses. Aim: To design and construct a web-enabled evidence based home program (IBDC) of self-management, information, and social support for pediatric IBD patients and their parents. Methods: Content was developed by pediatric gastroenterologists, nurses, psychologists, and dieticians, together with computer scientists with website development and gaming expertise. A pilot study in 40 patients (and 40 parents) is targeting the following outcomes: QOL, disease-specific knowledge, adherence to therapy, perceived stress and health care utilization. Results: Program development completed with website accessible via Internet by participants using unique usernames and passwords. Content is divided into 12 sessions, including disease-related knowledge and therapies; stress and pain management techniques. Information is imparted using text, flash animation and medical illustration, videos, and games to reinforce program content. Content is individualized based on disease type, treatments received, and can be targeted to reinforce areas of concern on the part of the patient, family or health care team. Participants (patient and one parent) work through each session and interact with a para-professional coach by phone who reinforces key session points and acts to ensure participants' questions are answered. Other website features include: peer-group chat rooms; a journal feature and message board; a “News” section where items of interest to participants will be posted; and private mail where the participant and coach can leave messages for each other. Outcome measures are completed online for immediate database entry. Testing and focus groups have demonstrated high levels satisfaction by participants. Conclusions: The web-based IBDC provides tertiary health services in a forum that is accessible to families without limitations of distance or school/work schedules.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.002 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.000 | 0.000 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.001 | 0.001 |
| Research integrity | 0.000 | 0.001 |
| Insufficient payload (model declined to judge) | 0.005 | 0.001 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".