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RECRUITMENT IN PEDIATRIC CLINICAL TRIALS: AN ETHICAL PERSPECTIVE

2005· review· en· W2006598011 on OpenAlexaff
Kourosh Afshar, Abhay Lodha, Adriana Moldovan Costei, NANCY VANEYKE

Bibliographic record

VenueThe Journal of Urology · 2005
Typereview
Languageen
FieldMedicine
TopicEthics in Clinical Research
Canadian institutionsSickKids FoundationHospital for Sick ChildrenUniversity of TorontoUniversity of British Columbia
Fundersnot available
KeywordsMedicineClinical trialMEDLINEPerspective (graphical)Ethical issuesFamily medicineEngineering ethicsPathologyLaw

Abstract

fetched live from OpenAlex

PURPOSE: There is a paucity of clinical trials in pediatric surgical disciplines. This is partly due to difficulties in recruiting participants. Frequently the origin of these problems lies in the ethical issues surrounding clinical trials in children. We reviewed the ethical barriers to recruitment in pediatric clinical trials and present recommendations to increase recruitment without violating accepted ethical boundaries. METHODS AND MATERIALS: A literature search using the MEDLINE, EMBASE and Google engines was performed. All available North American guidelines were reviewed. Guidelines at a major North American center were also reviewed as an example of institutional directives. RESULTS: Seven categories of ethical issues hampering recruitment were identified. The perspectives of different investigators are discussed as well as their recommended practical approaches to resolve the issues. CONCLUSIONS: Several recommendations are presented to help investigators enhance approval and recruitment rates in clinical trials involving children.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Direct model labels (unvalidated)

Per-model category and study-design labels from the labeling rounds. They are machine output, unvalidated, and the disagreement between models ships as data. No study design here is MEDLINE-validated yet.

Model armCategoriesStudy designConfidence
gemmaMetaresearchResearch integrity
Domain: Methods · Genre: Review
About the Canadian research system: no · About a Canadian topic: no
Not applicablelow
gptMetaresearch
Domain: Methods · Genre: Review
About the Canadian research system: no · About a Canadian topic: no
Not applicablehigh
models splitAgreement compares identical category sets and study designs across arms.

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.212
metaresearch head score (Gemma)0.268
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch
Consensus categoriesMetaresearch
DomainCandidate signal: Methods · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: none
GenreCandidate signal: Review · Consensus signal: Review
Teacher disagreement score0.788
Threshold uncertainty score0.971

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.2120.268
Meta-epidemiology (narrow)0.0010.001
Meta-epidemiology (broad)0.0030.001
Bibliometrics0.0030.005
Science and technology studies0.0020.009
Scholarly communication0.0060.008
Open science0.0030.004
Research integrity0.0080.008
Insufficient payload (model declined to judge)0.0030.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.921
GPT teacher head0.764
Teacher spread0.156 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Labeled directly by 2 models reading the full record.

MetaresearchResearch integrity

The models disagree on parts of this classification; every voice is preserved in the section at the end of the page.

Study designNot applicable
DomainMethods
GenreReview

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations23
Published2005
Admission routes1
Has abstractyes

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