Spanish adaptation of the Amyotrophic Lateral Sclerosis Questionnaire ALSAQ-40 for ALS patients
Why this work is in the frame
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Bibliographic record
Abstract
We studied the cross-cultural Spanish adaptation of the Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40) to assess the subjective health status in amyotrophic lateral sclerosis (ALS) patients. The ALSAQ-40 questionnaire was adapted and applied to 53 randomly selected ALS patients from different regions in Spain. Reliability assessment and factorial analysis were performed in order to determine the dimensions of the scale. The validation was carried out by means of comparing the ALSAQ-40 with two instruments usually used in the assessment of ALS patients--the Amyotrophic Lateral Sclerosis Functional Rating Scale (ALSFRS) and the McGill's Quality of Life Questionnaire (MQOL), comparing the latter with the emotional dimension of ALSAQ-40. This Spanish adaptation closely resembles the ALSAQ-40 although the emotional dimension is more heterogeneous and there are cluster-gathering Feeding and Communication dimensions. ALSAQ-40 and ALSFRS questionnaires showed a high correlation, as did the emotional dimension of ALSAQ-40 with the Psychological Symptoms, Life Expectancy, Meaningful Existence and the whole score of the MQOL. In conclusion, this Spanish adaptation of ALSAQ-40 is in accordance with the statistical results from the original English version.
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Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.001 |
| Meta-epidemiology (narrow) | 0.002 | 0.001 |
| Meta-epidemiology (broad) | 0.003 | 0.002 |
| Bibliometrics | 0.001 | 0.002 |
| Science and technology studies | 0.002 | 0.002 |
| Scholarly communication | 0.000 | 0.001 |
| Open science | 0.002 | 0.001 |
| Research integrity | 0.001 | 0.002 |
| Insufficient payload (model declined to judge) | 0.001 | 0.001 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it