Research “in the wild” and the shaping of new social identities
Why is this work in the frame?
A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.
No Canadian affiliation. An affiliation-only frame — the usual design — would never have seen this work. It is one of the works that make the case for inverting the frame.
Machine scores (provisional)
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
- Teacher spread
- 0.226 · how far apart the two teachers sit on this one work
- Validation status
score_only:v0-immature-baseline· verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it
Abstract
This article examines new forms of techno-science-society interactions, in which non-scientists work with scientists to produce and disseminate knowledge. The term “research in the wild” is coined to name a special version of this new phenomenon. The primary illustration for this new form of research is connected with the Association Française contra les Myopathies (AFM), the history of which is particularly suitable for exploring certain mechanisms at work in the co-production of scientific knowledge and social identities. The article first compares laboratory research with research in the wild, emphasizing patient interest in maintaining control over cooperation. It then notes the intimate interrelations between the construction of patient identities and the collective form of research in which they participate. Finally, it examines the role of genetics, both as it is integrated into the construction of the collective, and also into the production of mechanisms of exclusion—the reverse side of the constitution of a collective identity.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
The record
- Venue
- Technology in Society
- Topic
- Historical and Scientific Studies
- Field
- Medicine
- Canadian institutions
- —
- Funders
- Fundação para a Ciência e a TecnologiaConselho Nacional de Desenvolvimento Científico e TecnológicoJoint Information Systems CommitteeEuropean CommissionInternational Development Research Centre
- Keywords
- ConstitutionIdentity (music)Collective identitySociologyKnowledge productionWork (physics)Sociology of scientific knowledgeProduction (economics)PhenomenonEpistemologyFoundation (evidence)Control (management)Social sciencePublic relationsPolitical scienceLawKnowledge managementManagementEngineeringAestheticsPoliticsComputer science
- Has abstract in OpenAlex
- yes