Poster 430 Complementary and Alternative Medicine Use in Adult Cerebral Palsy: Needs, Barriers and Impact on Quality of Life
Bibliographic record
Abstract
D. Berbrayer, No Disclosures. To determine whether the use of complementary and alternative medicine (CAM) is a significant determinant of health in adult cerebral palsy, identify motivations for seeking CAM therapies and classify barriers to its use. The health outcome of most importance was quality of life, as measured by the WHO Disability Assessment Score. Structured survey administered at a tertiary academic institution. Survey was separated into three components: 1) demographics 2) use of CAM modalities presented as options on survey were: acupuncture, adeli suit, aquatic therapy, biofeedback, chiropractic, equine therapy, functional electrical stimulation, herbal/vitamin supplements, homeopathy, hyperbaric oxygen, massage therapy, naturopathy, prayer, relaxation therapy, stem cell therapy, traditional Chinese medicine; 3) health outcome: quality of life (adapted from WHO Disability Assessment Schedule). CAM use is common in adults with cerebral palsy (76%). Patient recruitment: in person or by mail. All patients in the clinic's patient registry were invited to participate; 169 approached, 19 consented, 17 completed the survey, exclusion criteria: cognitive impairment. Tertiary academic hospital. 17 adults with cerebral palsy: 8 males, 9 females, average age: 43.7 (20-88), average years school: 14.8 (8-18) 81.25% living independently or with family. Use of CAM modalities WHO Disability Assessment. Structured survey at clinic or online. 76% used 1 CAM modality in last 12 months, and 12% were interested in using CAM massage and herbal supplements. The most used barriers to CAM: too expensive and lack of information/providers. Subjective effects of CAM; improve function, reduce pain, improve sleep and energy. WHO Disability assessment: average disability score for CAM users, 28.8%. Average disability score for those who had not used CAM in the past 12 months was 53.0%. CAM use is common in adult cerebral palsy (76%). Barriers to CAM access are common - financial barriers, lack of information and providers, and accessibility issues. Most users of CAM perceive improvement in symptoms (most commonly cited benefits - improved function and energy as well as reduced pain). Average disability differs by 24% between CAM users and non-users.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
How this classification was reachedexpand
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.000 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.000 | 0.000 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.000 | 0.000 |
| Research integrity | 0.000 | 0.000 |
| Insufficient payload (model declined to judge) | 0.001 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one teacher head, not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".