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Record W2328062713 · doi:10.1300/j010v30n03_05

The Search for Legitimacy and the “Expertization” of the Lay Person

2000· article· en· W2328062713 on OpenAlexaff
Juanne N. Clarke

Bibliographic record

VenueSocial Work in Health Care · 2000
Typearticle
Languageen
FieldMedicine
TopicFibromyalgia and Chronic Fatigue Syndrome Research
Canadian institutionsWilfrid Laurier University
Fundersnot available
KeywordsLegitimacyLegitimationDiseaseCategorizationMedicineSupport groupPsychologySocial psychologyPsychiatryPublic relationsEpistemologyLawPathologyPolitical science

Abstract

fetched live from OpenAlex

Some "diseases" appear to be recognized first by sufferers. At times these diseases may be disclaimed by medical doctors and elusive to scientific categorization and description. In these cases sufferers may organize themselves together in support groups and lobby for money to finance the discovery of diagnostic markers that would legitimate and medicalize the constellation of symptoms that they experience. Chronic fatigue syndrome is such a disease; and it is characterized by varied and changing symptomatology. Its diagnostic markers are in the process of being refined. Presently, its diagnosis primarily originates in reports of subjective experience of extreme fatigue. Often-times people diagnose themselves after attending a support group and find a doctor through a support group network who believes in the disease. Sometimes, people then return to their own family doctors with information and try to teach their doctors about what they believe to be the nature of their disease, its prognosis and treatment. Through such paths as described in the paper, patients become "experts": they may often know more about the illness than doctors and non-suffering others. This paper moves beyond the experience of chronic illness to describe the processes through which people seek confirmation and legitimation for the way that they feel and in a sense become the "experts."

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.051
metaresearch head score (Gemma)0.074
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesScience and technology studies
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Theoretical or conceptual · Consensus signal: Theoretical or conceptual
GenreCandidate signal: Empirical · Consensus signal: none
Teacher disagreement score0.989
Threshold uncertainty score0.268

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0510.074
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0010.000
Bibliometrics0.0040.001
Science and technology studies0.0110.107
Scholarly communication0.0120.013
Open science0.0020.010
Research integrity0.0060.007
Insufficient payload (model declined to judge)0.0040.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.027
GPT teacher head0.346
Teacher spread0.320 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

Study designTheoretical or conceptual
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations37
Published2000
Admission routes1
Has abstractyes

Explore more

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