Bibliographic record
Abstract
Living with Juvenile Arthritis: A Parent's Guide is an easy-to-read book directed at parents of children with juvenile arthritis (JA) and related conditions.Written from the perspective of a mother of 2 children with JA, the book is well organized with stories, case examples, and practical tips and strategies, as well as highlighted sections that provide take-home messages for readers.The author's use of sports analogies (Miller is the wife of a former National Football League player) and her ease of writing make this an easily accessible read for parents at any stage of their child's disease course.An important caution to readers is that the author presents a particular perspective.First, she has 2 children with JA, which is not typical.Second, 1 of her children has a unique and complex disease course that is not representative of the typical patient with JA.While the Guide covers topics useful for all parents, the provided case examples are severe and could unnecessarily alarm parents of newly diagnosed children.The sections on how to communicate effectively with the healthcare team and how to find reliable information online are particularly helpful.It was good to see a section dedicated to self-care for parents where important insights are shared on the effects of parental attitude on child and family coping.The book ends on an encouraging note with a chapter about the positive effect families can have when they become involved in advocacy.Although this is not a resource for parents looking for information on what to expect of their particular child's disease course, this book has a lot to offer.For parents looking for tips and strategies on how to cope with their child's JA, Miller has learned a lot from her own difficult journey.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.002 |
| Meta-epidemiology (narrow) | 0.001 | 0.001 |
| Meta-epidemiology (broad) | 0.001 | 0.000 |
| Bibliometrics | 0.001 | 0.000 |
| Science and technology studies | 0.001 | 0.000 |
| Scholarly communication | 0.001 | 0.002 |
| Open science | 0.001 | 0.001 |
| Research integrity | 0.002 | 0.003 |
| Insufficient payload (model declined to judge) | 0.060 | 0.035 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".