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Record W2340971688 · doi:10.1177/1073110516644205

The European Union's Adequacy Approach to Privacy and International Data Sharing in Health Research

2016· article· en· W2340971688 on OpenAlexfundno aff
Jennifer Stoddart, Benny Chan, Yann Joly

Bibliographic record

VenueThe Journal of Law Medicine & Ethics · 2016
Typearticle
Languageen
FieldMedicine
TopicEthics in Clinical Research
Canadian institutionsnot available
FundersNational Human Genome Research InstituteWorld Anti-Doping AgencyEuropean Commission
KeywordsJurisdictionEuropean unionData sharingData Protection Act 1998Proportionality (law)Transparency (behavior)Data Protection DirectiveDirectiveData qualityBusinessDirective on Privacy and Electronic CommunicationsInternational tradeFTC Fair Information PracticeGeneral Data Protection RegulationInformation privacy lawInformation privacyEuropean Union lawPolitical scienceLawPrivacy by DesignComputer science

Abstract

fetched live from OpenAlex

The European Union (EU) approach to data protection consists of assessing the adequacy of the data protection offered by the laws of a particular jurisdiction against a set of principles that includes purpose limitation, transparency, quality, proportionality, security, access, and rectification. The EU's Data Protection Directive sets conditions on the transfer of data to third countries by prohibiting Member States from transferring to such countries as have been deemed inadequate in terms of the data protection regimes. In theory, each jurisdiction is evaluated similarly and must be found fully compliant with the EU's data protection principles to be considered adequate. In practice, the inconsistency with which these evaluations are made presents a hurdle to international data-sharing and makes difficult the integration of different data-sharing approaches; in the 20 years since the Directive was first adopted, the laws of only five countries from outside of the EU, Economic Area, or the European Free Trade Agreement have been deemed adequate to engage in data transfers without the need for further administrative safeguards.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Direct model labels (unvalidated)

Per-model category and study-design labels from the labeling rounds. They are machine output, unvalidated, and the disagreement between models ships as data. No study design here is MEDLINE-validated yet.

Model armCategoriesStudy designConfidence
gemmaScholarly communication
Domain: not available · Genre: Empirical
About the Canadian research system: no · About a Canadian topic: no
Not applicablelow
gptno category
Domain: not available · Genre: Commentary
About the Canadian research system: no · About a Canadian topic: no
Theoretical or conceptualmedium
models splitAgreement compares identical category sets and study designs across arms.

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.187
metaresearch head score (Gemma)0.164
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: none
GenreCandidate signal: Other · Consensus signal: Other
Teacher disagreement score0.187
Threshold uncertainty score0.989

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.1870.164
Meta-epidemiology (narrow)0.0010.001
Meta-epidemiology (broad)0.0020.003
Bibliometrics0.0060.006
Science and technology studies0.0080.042
Scholarly communication0.0190.016
Open science0.0050.019
Research integrity0.0200.014
Insufficient payload (model declined to judge)0.0040.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.905
GPT teacher head0.680
Teacher spread0.225 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Labeled directly by 2 models reading the full record.

Scholarly communication

The models disagree on parts of this classification; every voice is preserved in the section at the end of the page.

Study designNot applicable · Theoretical or conceptual
Domainnot available
GenreEmpirical · Commentary

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations22
Published2016
Admission routes1
Has abstractyes

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