P2‐397: Making an Exit: Personhood Perspectives on the Drive for a Cure
Bibliographic record
Abstract
Alzheimer’s disease is a modern concept associated with the emergence of scientific approaches to studying the brain. It affects not only individuals but the entire fabric of interpersonal relationships. Today the Alzheimer’s field epitomizes modern biomedical orientations which focus on precise diagnostic labeling, objective data, and claims that effective pharmaceutical treatments are within reach. Narratives of care partnerships that place individuals in networks of relationship are important antidotes to this dominant, essentially individualistic, scientific focus. Such partnerships in dementia care can succeed by adopting the postmodern attributes of play and disruption and “staying in the moment.” Play is a way to avoid over-medicalization. This paper will challenge the mainstream scientific approach to late life dementia by relying both on the critical work of Peter Whitehouse, and on two books by Yale Drama School professor Elinor Fuchs, her Alzheimer’s memoir Making an Exit, and her award-winning study of postmodern theater, The Death of Character. Their two voices, including the voice of Fuchs’s late mother Lil, have engaged in a playful, yet seriously intended, alternation as a way of modeling a loving but non-rationalistic partnering approach to dementia. Caregiving can and should be a deeply nuanced and potentially positive experience. Topics like the meaning of ‘personhood,’ the importance of the dyad in relationship, the spiritual value of caregiving to the dementia caregiver, and the possibility of personal growth even in one who has lost the capacity for sequential language and thought, emerge in Fuchs’s memoir and in this presentation. The exploration of caring relationships in the context of dementia can deepen our understanding of aging, cognitive and brain health, and the meaning of personhood. Such efforts illuminate different ways, which can perhaps be classified as modern and postmodern, to address age related cognitive decline.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.005 | 0.005 |
| Meta-epidemiology (narrow) | 0.001 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.001 |
| Bibliometrics | 0.001 | 0.001 |
| Science and technology studies | 0.018 | 0.055 |
| Scholarly communication | 0.010 | 0.016 |
| Open science | 0.001 | 0.007 |
| Research integrity | 0.005 | 0.012 |
| Insufficient payload (model declined to judge) | 0.006 | 0.001 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".