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Record W2580838839

Law in tension with evolving ethical perception: prenatal genetic testing for sex and disability

2004· article· en· W2580838839 on OpenAlexafffund
Michael Burgess, Bryn Williams–Jones

Bibliographic record

VenueORCA Online Research @Cardiff (Cardiff University) · 2004
Typearticle
Languageen
FieldMedicine
TopicReproductive Health and Technologies
Canadian institutionsUniversity of British Columbia
FundersCardiff UniversitySocial Sciences and Humanities Research Council of CanadaHigher Education Funding Council for Wales
KeywordsPsychologySocial psychologyGenetic testingPerceptionTest (biology)Quality of life (healthcare)Quality (philosophy)Medicine
DOInot available

Abstract

fetched live from OpenAlex

Legal prohibitions are often simple responses to highly complex ethical and social problems. Recommendations for legal prohibition of prenatal sex-selection distinguish between testing for sex and for disabling conditions. This distinction appears to be based on an objective difference between gender and disease or conditions that are themselves causes of suffering. But ethical analysis reveals symmetry between these two cases, challenging whether the law is responding to differences in the nature of the test, or to social pressures against discrimination that are better developed with respect to sexism than is the case for disability discrimination. This paper argues that the strongest position against sex-selection is based on a rejection of the parental assessment that a person’s sex seriously compromises quality of life together with the dedication of social resources to minimize discrimination based on sex. Some genetic conditions produce disabilities that cannot be alleviated through improved social circumstances; the reasons for not restricting prenatal testing and termination as an option for parents for these conditions are distinguishable from those supporting prohibition of sex-selection. However, the severity and lack of predictability of disability associated with other genetic conditions are strongly contingent on social circumstances. Thus it may be reasonable to acknowledge that serious social reforms are required while at the same time supporting parental assessment of quality of life through testing and termination. But problems to do with the aggregate effects of individual parental choices, together with the need to work toward more supportive social circumstances, emphasize the importance of involving persons with disabilities and their spokespersons in evaluating social circumstances, disability discrimination, appropriate prenatal testing and related information to support parental decisions.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.001
metaresearch head score (Gemma)0.002
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.073
Threshold uncertainty score0.689

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0010.002
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.001
Science and technology studies0.0000.001
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.001
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.084
GPT teacher head0.363
Teacher spread0.279 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one teacher head, not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designObservational
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations2
Published2004
Admission routes2
Has abstractyes

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