118: Assessing the Child Health Information Needs of Parents and Families
Bibliographic record
Abstract
Parents seek child health information for dealing with acute illnesses, guidance on parenting, and to improve knowledge of child development. There are many comprehensive child health information sources available; however, no centralized access point exists making navigation a challenge for many parents. Well-defined barriers include access, language, appraisal of information sources, and health literacy. This study aimed to determine the health knowledge needs, information resources, and barriers to access among families with well children aged zero to 12 years who are seeking preventative or proactive health knowledge information. Ethics approval was obtained from our institutional Quality Improvement Projects review board. Six focus groups were conducted with parents of children aged zero to 12 years from various racial and socioeconomic backgrounds. Focus groups were recorded and transcribed using a professional transcription service. Data analysis involved thematic coding of transcripts. Data triangulation was achieved by having multiple investigators code the first focus group to develop, through a consensus-building approach, a series of general themes that were explored across data sets. This model was refined using the subsequent focus group data. Major themes and sub-themes were determined by analyzing trends and patterns. Analysis yielded four major themes: sources for health information, information autonomy, insecurity, and barriers. Major sources of health information included the internet, physicians, and help lines. Information autonomy referred to parents' ability to make decisions and obtain information without health care assistance. Insecurity referred to acute or chronic stress associated with child health and wellness issues. Barriers referred to social and health care related difficulties in accessing information. A central theme, empowerment, was found to link all major themes. Empowerment referred to parents' ability to be successfully involved in the care of their child in terms of information seeking, investigation and maintaining general well-being. A subgroup of parents were unempowered and described a lack of information autonomy, a higher level of insecurity and more varied and severe barriers in caring for their children. Parents expressed a desire for a resource that is broadly accessible, interactive, personalizable, credible, up to date, and intuitive. In a subgroup of unempowered parents, it may not be adequate to give specific information for discrete issues as this may perpetuate reliance. The goal of child health information resource development should be to produce a system that will empower all parents and provide the tools and resources for parents to search for information autonomously and effectively.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.006 | 0.022 |
| Meta-epidemiology (narrow) | 0.000 | 0.001 |
| Meta-epidemiology (broad) | 0.001 | 0.001 |
| Bibliometrics | 0.002 | 0.002 |
| Science and technology studies | 0.002 | 0.000 |
| Scholarly communication | 0.002 | 0.002 |
| Open science | 0.001 | 0.002 |
| Research integrity | 0.001 | 0.001 |
| Insufficient payload (model declined to judge) | 0.004 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".