245 Work matters: a UK-wide survey of adults with rheumatoid arthritis and juvenile idiopathic arthritis on the impact of their disease on work
Bibliographic record
Abstract
Background: 10 years ago, the National Rheumatoid Arthritis Society (NRAS) ran a survey and found that people with rheumatoid arthritis (RA) are less likely to be in employment than the general population, and that there are significant barriers to work. To understand how this situation has changed over the last 10 years, NRAS surveyed over 1,500 people with RA to understand their experiences in June 2017 to July 2017. Methods: NRAS worked with the University of Manchester (UoM) to develop open and closed questions to explore the current state of employment of people with RA, as well as barriers to remaining in and returning to employment. The survey was developed jointly with UoM and contained validated questionnaires on absenteeism and presenteeism. The survey was distributed by NRAS to its members through email and non-members through social media. Results: 63.3% of people surveyed were in employment, an increase from 2007 when this figure was at 54.8%. However, a significant number of people were concerned about the possibility of them remaining in the job if there were any changes to the nature of the work. Participants commented on the challenges and advantages of work, with the primary advantages being financial security, sense of purpose and enjoyment, and the employer/working environment. However, many of the challenges barriers to work included the role being too demanding, RA symptoms, lack of reasonable adjustments, the commute, and the lack of an understanding employer/colleagues. Almost 40% of participants stated that their employers did not understand the disease and that help that was not available for both employers and employees. Nearly half of all respondents had to use annual leave in order to deal with their RA, with this being just one example of how employers had breached the Equality Act 2010. The survey also found that low numbers of people claimed benefits with Disability Living Allowance and/or Personal Independence Payments and Blue Badge being the most commonly claimed. Many participants had co-morbidities, with particularly high numbers of people reporting mental health issues.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.004 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.001 |
| Bibliometrics | 0.001 | 0.001 |
| Science and technology studies | 0.001 | 0.000 |
| Scholarly communication | 0.001 | 0.001 |
| Open science | 0.000 | 0.002 |
| Research integrity | 0.001 | 0.001 |
| Insufficient payload (model declined to judge) | 0.003 | 0.001 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".