Psoriasis Patients' Reflections on Provider Information Giving: Perceptions of Actual and Desired Experiences at Diagnosis
Bibliographic record
Abstract
Background Psoriasis adversely impacts patients' quality of life, yet few studies have explored patients' experiences at diagnosis, a pivotal though largely negative time for any patient suffering from chronic disease. Objective Our objective was to identify potential shortcomings in the content and process of information delivery from the patient's perspective. Methods Twenty-three psoriasis patients completed an online survey regarding information they considered valuable at diagnosis and, in retrospect, content they would like to have received. Results Responses were subjected to a qualitative content analysis that revealed several themes: need for information and options, discussion of time and effort to find the right treatment, for providers to offer hope, and discussion of the psychosocial impact of psoriasis. Conclusions Many patients perceived negative actual experiences at diagnosis that were incongruent with their desired experiences. Psoriasis patients wanted information about disease and management, acknowledgement of psychosocial impact, and an empathetic mode of communication.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.007 | 0.033 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.001 | 0.000 |
| Science and technology studies | 0.003 | 0.002 |
| Scholarly communication | 0.003 | 0.002 |
| Open science | 0.000 | 0.002 |
| Research integrity | 0.001 | 0.003 |
| Insufficient payload (model declined to judge) | 0.004 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".