Mapping Patient Involvement in Drug Coverage Recommendations: Boundary Work in the Context of Canada's Health Technology Assessment Agency
Bibliographic record
Abstract
This dissertation investigates the Patient Input Program, the context from which it arose and the struggles that it evokes for rare disease patients. By drawing on the concepts of boundary work, boundary object, public involvement and needs talk, the dissertation explores a local application of patient involvement as a construction of social participation and site where the needs of rare disease patients are contested among the actors, groups and institutions involved in the Health Technology Assessment (HTA) network. A case study approach was chosen to explain the intrinsic aspects of the Patient Input Program, showing the shaping of the Program and its shaping effect on societal agents and knowledge forms, particularly with respect to rare disease patients. Their experience in the Patient Input Program provides insights on the complexities and controversies rooted within the program, and links more broadly to certain system inadequacies.
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How this classification was reachedexpand
Direct model labels (unvalidated)
Per-model category and study-design labels from the labeling rounds. They are machine output, unvalidated, and the disagreement between models ships as data. No study design here is MEDLINE-validated yet.
| Model arm | Categories | Study design | Confidence |
|---|---|---|---|
| gemma | Science and technology studies Domain: not available · Genre: Other About the Canadian research system: yes · About a Canadian topic: yes | Qualitative | high |
| gpt | Science and technology studies Domain: not available · Genre: Empirical About the Canadian research system: yes · About a Canadian topic: yes | Qualitative | low |
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.004 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.001 | 0.000 |
| Bibliometrics | 0.001 | 0.002 |
| Science and technology studies | 0.001 | 0.000 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.001 | 0.000 |
| Research integrity | 0.001 | 0.004 |
| Insufficient payload (model declined to judge) | 0.001 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedLabeled directly by 2 models reading the full record.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".