“It’s very humbling”: The Effect Experienced by Those Who Facilitate a Legacy Project Session Within Palliative Care
Bibliographic record
Abstract
OBJECTIVES:: The creative arts can be utilized within palliative care to facilitate the creation of a legacy project, an object which will reflect the unique experiences and interests of the creator. This can be bestowed to a loved one, thereby providing an opportunity to leave something tangible behind. However, there is a paucity of evidence exploring the impact experienced by those who facilitate the legacy generation session. METHODS:: "From The HEart" is a volunteer operated program that offers creative arts based legacy projects to palliative care patients. Five volunteers were interviewed to understand their personal experiences. Emphasis was placed on any perceived positive or negative impact from this work, and if a self-care program would be required. Interviews were transcribed verbatim into a textual document which was coded by the principal investigator using inductive content analysis to derive overarching themes. RESULTS:: Five themes emerged from the data: "providing a benefit", "internal validation", "it's all been positive", "self-awareness", and "if you need support". All facilitators reported positive experiences, which provided internal validation or confirmation that this work was personally significant to this group. Self-care practises emerged as important, but group activities would only be warranted if requirements couldn't be meet through individual self-care practises. SIGNIFICANCE OF RESULTS:: This study provides confirmation that facilitators do not report any negative experiences while assisting a palliative care client in creating a legacy project. These activities can provide meaning while working in the field of palliative care.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.010 | 0.045 |
| Meta-epidemiology (narrow) | 0.001 | 0.000 |
| Meta-epidemiology (broad) | 0.001 | 0.001 |
| Bibliometrics | 0.001 | 0.000 |
| Science and technology studies | 0.008 | 0.008 |
| Scholarly communication | 0.004 | 0.003 |
| Open science | 0.002 | 0.008 |
| Research integrity | 0.003 | 0.004 |
| Insufficient payload (model declined to judge) | 0.006 | 0.001 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".