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Record W2904250339 · doi:10.22374/jfasrp.v1i1.2

Waving a Magic Wand

2018· article· en· W2904250339 on OpenAlexafffundabout
Jenna M. Pepper, Kelly D. Harding, Celisse Bibr, Shelley L. Watson

Bibliographic record

VenueJournal of Fetal Alcohol Spectrum Disorder · 2018
Typearticle
Languageen
FieldPsychology
TopicFamily and Disability Support Research
Canadian institutionsBC Research (Canada)Laurentian University
FundersSocial Sciences and Humanities Research Council of Canada
KeywordsRespite careAutism spectrum disorderFetal Alcohol Spectrum DisorderThematic analysisPsychologyDevelopmental psychologyQualitative researchAutismClinical psychologyMedicineNursingPregnancySociology

Abstract

fetched live from OpenAlex

Background and Objective: The purpose of this paper is to examine the experience of parents raising children with Fetal Alcohol Spectrum Disorder (FASD) and Autism Spectrum Disorder (ASD) in the middle childhood stage of development. Furthermore, this research investigates parents’ formal and informal support needs as they adapt to the demands of raising their children.
 Material and Methods: 26 parents of children with FASD and ASD who reside in Ontario, Canada completed the Family Resource Scale, the Family Crisis Oriented Personal Scales, and participated in semi-structured interviews informed by the Family Adjustment and Adaptation Response (FAAR) model.
 Results: Using thematic analysis, three major themes were identified: (1) qualification for services and service availability; (2) formal supports and; (3) informal supports. The findings indicate that although there are services (e.g., respite care) available in Ontario, parents do not perceive there to be enough services to satisfy their family’s needs.
 Conclusion: This study demonstrates that supports need to be tailored to each child’s individual needs. ASD and FASD both occur on a spectrum, and available resources should reflect that diversity. Considerations and future directions for ASD and FASD related family research are discussed.
 Key Words: fetal alcohol spectrum disorder; autism spectrum disorder; mixed methods; families; support

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.001
metaresearch head score (Gemma)0.000
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesInsufficient payload (model declined to judge)
Consensus categoriesInsufficient payload (model declined to judge)
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.114
Threshold uncertainty score0.999

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0010.000
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0000.000
Bibliometrics0.0000.000
Science and technology studies0.0000.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0180.002

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.035
GPT teacher head0.360
Teacher spread0.326 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; both teacher heads agree on what is shown here.

Study designObservational
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations1
Published2018
Admission routes3
Has abstractyes

Explore more

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