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Record W2921663062 · doi:10.5206/uwomj.v87i2.1101

Big data in healthcare research - how can we address public concerns of privacy

2019· article· en· W2921663062 on OpenAlexvenueno aff
Richard Ying Yu, Lily Robinson, Salonee V. Patel

Bibliographic record

VenueUniversity of Western Ontario Medical Journal · 2019
Typearticle
Languageen
FieldMedicine
TopicEthics in Clinical Research
Canadian institutionsnot available
Fundersnot available
KeywordsConfidentialityBig dataInternet privacyContext (archaeology)Health careInformation privacyPrivacy by DesignField (mathematics)Data scienceComputer scienceComputer securityBusinessPolitical scienceData mining

Abstract

fetched live from OpenAlex

Big data is an emerging technological field that encompasses massive datasets. Its role in the healthcare field is currently being explored and has the potential to greatly improve healthcare and disease surveillance through pattern analysis of health data. Concerns had by the general public focus primarily on potential breaches of privacy and confidentiality of patient medical health records in the context of research. These concerns relate to the innate characteristics of big data, such as large size and fast data acquisition speed, which increases the risk of breaching confidentiality. Therefore, it is important for physicians to be mindful of privacy concerns and maintain trust as big data becomes more prominent. Doing so is a key factor in building public trust in the use. Understanding strategies and limitations of current practice standards will allow physicians to build on existing guidelines to incorporate the rise of big data. This means prioritizing privacy when handling big data through anonymization, creating safe havens and promoting dynamic informed consent practice standards.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.398
metaresearch head score (Gemma)0.497
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch
Consensus categoriesMetaresearch
DomainCandidate signal: Methods · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: none
Teacher disagreement score0.602
Threshold uncertainty score0.743

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.3980.497
Meta-epidemiology (narrow)0.0010.002
Meta-epidemiology (broad)0.0050.003
Bibliometrics0.0050.006
Science and technology studies0.0110.075
Scholarly communication0.0380.072
Open science0.0070.023
Research integrity0.0250.037
Insufficient payload (model declined to judge)0.0060.004

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.718
GPT teacher head0.540
Teacher spread0.178 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; the direct Gemma label and the distilled Codex classifier agree on what is shown here.

Study designNot applicable
DomainMethods
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations1
Published2019
Admission routes1
Has abstractyes

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