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Identifying Early Developmental Profiles in Children with FXS: A Retrospective Home Videos Analysis

2019· article· en· W2944373346 on OpenAlex
Nuno Alexandre Gomes Costa, Vítor Franco

Why this work is in the frame

A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.

venuePublished in a venue whose home country is Canada.
no affNo Canadian affiliation: this work is invisible to an affiliation-only frame.
No Canadian affiliation. An affiliation-only frame, the usual design, would never have seen this work. It is one of the works that make the case for inverting the frame.

Bibliographic record

VenueJournal of Intellectual Disability - Diagnosis and Treatment · 2019
Typearticle
Languageen
FieldNeuroscience
TopicWilliams Syndrome Research
Canadian institutionsnot available
Fundersnot available
KeywordsPsychologyDevelopmental psychologyMedicinePediatrics

Abstract

fetched live from OpenAlex

One of the major difficulties concerning Fragile X Syndrome has been early diagnosis enabling early intervention. The obstacle stems from the dismissal of signs that might raise suspicion that the syndrome is present and therefore subsequent diagnosis. The present research aims to validate a methodology employing retrospective home video analysis to explore possible early signs in children with Fragile X Syndrome. As part of this trial the videos of 6 children aged less than 30 months were analysed. We utilized a set formed by three behavioural analysis grids, mainly to analyse social attention, joint attention and sensory-motor development of said children. The retrospective home video analysis demonstrated its effectiveness in early sign identification. We verified that children with FXS had a non-social stimuli preference (e.g., prolonged visual fixation on objects), had difficulties directing attention to social stimuli (e.g., attention and response to name calling), demonstrating impairments in joint attention, and displayed prolong and repetitive interaction with objects as well as positive affective expressions. Our findings indicated that children with FXS seem to be able to discriminate between social and non-social stimuli (e.g., vocalization to people) and presented stereotypes behavior from 0 up till 30 months. Use of home videos is a potentially important methodology in identification of early sign. Identified signs from this study may serve as markers for medical referral to genetic diagnosis.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.000
metaresearch head score (Gemma)0.001
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.020
Threshold uncertainty score0.695

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0000.001
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0010.000
Bibliometrics0.0000.001
Science and technology studies0.0000.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0010.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.038
GPT teacher head0.294
Teacher spread0.256 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it