Common content between quality of life questionnaires for children with cystic fibrosis and the International Classification of Functionality, Disability and Health.
Bibliographic record
Abstract
Cystic fibrosis imposes a heavy treatment burden on the quality of life and psychological well-being of children.Since much of the daily management of cystic fibrosis occurs at home, observing the child's ability to participate in school-based and leisure activities is of paramount importance, as participation in these activities is considered essential for child development, in addition to contributing to health-related quality of life.This study identified the quality of life questionnaires for cystic fibrosis and linked their items to the International Classification of Functioning, Disability and Health (ICF).In the 2 questionnaires presented here, the categories primarily represented body functions and, al though environmental factors play an important role in children's participation in home, school and community activities, and can act as a support or barrier, they were the categories least covered by the 2 questionnaires and no items were related to body structures in any of the instruments. Objective: To identify the most common quality of life instruments for children with cystic fibrosis and link the content with the International Classification of Functioning, Disability and Health (ICF).Methods: The study was conducted in 2 stages.The first stage involved a review of the literature to select quality of life questionnaires.In the second stage 2 independent reviewers identified questionnaire items and categories corresponding to the ICF, according to approved methodology.The degree of agreement was calculated using the kappa coefficient.Results: Two questionnaires were selected: the Cystic Fibrosis Questionnaire and DISABKIDS®.A total of 130 concepts were identified from the 112 items.Forty-seven different ICF categories were linked (k>0.62 for all questionnaires), 21 (44.7%) were related to the "body function" domain, 20 (42.6%) to "activity and participation" and 6 (12.8%) to "environmental factors".Thirteen items (10%) could not be linked because they represent personal factors or are not covered by the ICF.Conclusion: Body functions were the category most linked to the ICF.Environmental factors were poorly described, and no items were related to body structures in any of the instruments.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.024 | 0.074 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.001 | 0.002 |
| Bibliometrics | 0.009 | 0.006 |
| Science and technology studies | 0.001 | 0.001 |
| Scholarly communication | 0.001 | 0.001 |
| Open science | 0.001 | 0.003 |
| Research integrity | 0.001 | 0.001 |
| Insufficient payload (model declined to judge) | 0.002 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".