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Record W2966483955 · doi:10.3899/jrheum.181123

Improving Benefit-harm Assessment of Therapies from the Patient Perspective: OMERACT Premeeting Toward Consensus on Core Sets for Randomized Controlled Trials

2019· article· en· W2966483955 on OpenAlexafffundvenue
Kathleen M. Andersen, Jonathan T. L. Cheah, Lyn March, Susan J. Bartlett, Dorcas Beaton, Clifton O. Bingham, Robin Christensen, Philip G. Conaghan, Maria Antonietta D’Agostino, Maarten de Wit, Amylou C. Dueck, Susan M. Goodman, Shawna Grosskleg, Catherine Hill, Martin Howell, Sarah Mackie, Bethan Richards, Beverly Shea, Jasvinder A. Singh, Vibeke Strand, Peter Tugwell, George A. Wells, Lee S. Simon

Bibliographic record

VenueThe Journal of Rheumatology · 2019
Typearticle
Languageen
FieldMedicine
TopicRheumatoid Arthritis Research and Therapies
Canadian institutionsUniversity of OttawaInstitute for Work & HealthMcGill UniversityOttawa Hospital
FundersLeeds Biomedical Research CentreMedical Research CouncilWeill Cornell Medical CollegeAssistance publique-Hôpitaux de ParisUniversity of MelbourneUniversity of SydneyAgence Nationale de la RechercheLaboratoire d'Excellence InflamexUniversity of LeedsNational Institute for Health and Care ResearchSchool of Medicine, University of Alabama at BirminghamParker Institute for Cancer ImmunotherapyMcGill UniversityUniversity of OttawaInstitut National de la Santé et de la Recherche MédicaleOak FoundationHospital for Special SurgeryOdense UniversitetshospitalOttawa Hospital Research Institute
KeywordsMedicineRandomized controlled trialPerspective (graphical)HarmCore (optical fiber)Physical therapyClinical trialAlternative medicineIntensive care medicineFamily medicineInternal medicinePathology

Abstract

fetched live from OpenAlex

OBJECTIVE: Outcome Measures in Rheumatology (OMERACT) convened a premeeting in 2018 to bring together patients, regulators, researchers, clinicians, and consumers to build upon previous OMERACT drug safety work, with patients fully engaged throughout all phases. METHODS: Day 1 included a brief introduction to the history of OMERACT and methodology, and an overview of current efforts within and outside OMERACT to identify patient-reported medication safety concerns. On Day 2, two working groups presented results; after each, breakout groups were assembled to discuss findings. RESULTS: Five themes pertaining to drug safety measurement emerged. CONCLUSION: Current approaches have failed to include data from the patient's perspective. A better understanding of how individuals with rheumatic diseases view potential benefits and harms of therapies is essential.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.855
metaresearch head score (Gemma)0.838
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch
Consensus categoriesMetaresearch
DomainCandidate signal: Methods · Consensus signal: Methods
Study designCandidate signal: Not applicable · Consensus signal: none
GenreCandidate signal: Methods · Consensus signal: none
Teacher disagreement score0.145
Threshold uncertainty score0.202

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.8550.838
Meta-epidemiology (narrow)0.0030.006
Meta-epidemiology (broad)0.0100.014
Bibliometrics0.0150.007
Science and technology studies0.0090.011
Scholarly communication0.0230.024
Open science0.0130.034
Research integrity0.0210.047
Insufficient payload (model declined to judge)0.0040.002

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.037
GPT teacher head0.358
Teacher spread0.322 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; the direct Gemma label and the distilled Codex classifier agree on what is shown here.

Study designNot applicable
DomainMethods
GenreMethods

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations10
Published2019
Admission routes3
Has abstractyes

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