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P-14 The best death I’ve ever witnessed: examining responses to new narratives around end of life choice

2019· article· en· W2990751055 on OpenAlexaboutno aff
Lloyd Riley, Davina Hehir

Bibliographic record

VenuePoster presentations · 2019
Typearticle
Languageen
FieldMedicine
TopicPalliative Care and End-of-Life Issues
Canadian institutionsnot available
Fundersnot available
KeywordsGratitudeDignityEnd-of-life careAutonomyNarrativePalliative careThematic analysisPsychologyAssisted suicideSociologyMedicineSocial psychologyPolitical scienceQualitative researchNursingLawArtPsychiatry

Abstract

fetched live from OpenAlex

Background Dr David Juurlink recently used Twitter (18 May 2019) to describe why one of his patients requested assistance to die under Canada’s Medical Aid in Dying (MAiD) law. Dr Juurlink’s tweet has over 31k retweets, 71k likes and 1.2k comments. Aims To analyse responses to Dr Juurlink’s tweet. Methods A thematic analysis of responses to Dr Juurlink’s tweet was conducted. Results Responses were overwhelmingly positive. Expressing gratitude: ‘…Thank you for being open-minded and respectful of her and her families wishes. Thank you for easing her pain … thank you to MAiD who gave her dignity and autonomy on her last journey.’ Sharing experiences: ‘Thank you for sharing... I painfully watched my mother take a week to pass away when the end was inevitable. It will haunt me for the rest of my life.’ Segueing into broader end-of-life issues: ‘…your patient was able to bring her life to a close in comfort and with dignity not only because of MAiD, but also her willingness to openly discuss her mortality and wishes with both her MDs and her family …’ ‘As an anesthesiologist (who is often the first to have a goals of care discussion with a surgical patient) & also as a daughter of a father who died in an ICU w the support of #palliativecare, I thnk u... We need to be having these conversations’ And also prompting different perspectives on MAiD: ‘…Hospice is what she needed! It already exists and would have had the same outcome …’ Conclusions As more jurisdictions legalise assisted dying, stories such as Dr Juurlink’s will increasingly enter public discourse. Assisted dying narratives can be used to promote broader conversations around death and dying. Twitter seems a receptive environment for narratives to be shared and discussed.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.013
metaresearch head score (Gemma)0.060
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Qualitative · Consensus signal: Qualitative
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.013
Threshold uncertainty score0.070

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0130.060
Meta-epidemiology (narrow)0.0010.001
Meta-epidemiology (broad)0.0010.001
Bibliometrics0.0010.002
Science and technology studies0.0100.012
Scholarly communication0.0080.012
Open science0.0020.011
Research integrity0.0040.009
Insufficient payload (model declined to judge)0.0070.002

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.205
GPT teacher head0.437
Teacher spread0.232 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designQualitative
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

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Citations0
Published2019
Admission routes1
Has abstractyes

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