Evaluation and intervention in the family of adolescents with sickle cell disease
Bibliographic record
Abstract
ABSTRACT Objectives : to evaluate the structure/functionality/development of the family of adolescents with sickle cell disease and implement interventions after evidence identified. Method : it is a case study with a qualitative approach. The Calgary model of evaluation and family intervention was used as theoretical reference and the case study as a methodological strategy. Data were collected from two families. Results : It was found that one family was single-parent and the other was extended . The application of the theoretical reference allowed to know aspects related to the structure/functioning/development of the family. From this integral evaluation, it was possible, in partnership with its members, to propose interventions such as guidelines on sickle cell disease/treatment and music therapy sessions, contributing to socialization and improvement in the family environment, as well as relaxation and reduction of anxiety. Conclusion : home care could provide support and strengthen each family, within its specificity. Descriptors : Family; Anemia, Sickle cell; Adolescent health; Nursing; Adolescent. RESUMO Objetivos : avaliar a estrutura/funcionalidade/desenvolvimento da familia de adolescentes com doenca falciforme e implementar intervencoes apos evidencias identificadas . Metodo : estudo de caso com abordagem qualitativa. Utilizou-se como referencial teorico o modelo Calgary de avaliacao e intervencao familiar e como estrategia metodologica o estudo de caso. Os dados foram coletados em duas familias. Resultados : verificou-se que uma familia era monoparental e a outra era estendida. A aplicacao do referencial teorico permitiu conhecer aspectos relacionados a estrutura/funcionamento/desenvolvimento da familia. A partir dessa avaliacao integral foi possivel, em parceria com seus integrantes, propor intervencoes, como orientacoes sobre a doenca falciforme/tratamento e sessoes de musicoterapia, contribuindo, dessa forma, para socializacao e melhora no ambiente familiar, alem de relaxamento e reducao da ansiedade . Conclusao : a atencao domiciliar foi capaz de proporcionar suporte e de fortalecer cada familia, dentro de sua especificidade. Descritores : Familia; Anemia Falciforme; Saude do Adolescente; Enfermagem; Adolescente. RESUMEN Objetivos : evaluar la estructura / funcionalidad / desarrollo de la familia de adolescentes con enfermedad falciforme e implementar intervenciones despues de evidencias identificadas . Metodo : estudio de caso con enfoque cualitativo . Se utilizo como referencial teorico el modelo Calgary de evaluacion e intervencion familiar y como estrategia metodologica el estudio de caso . Los datos fueron recogidos junto a dos familias . Resultados : se verifico que una familia era monoparental y la otra era estendida . La aplicacion del referencial teorico permitio conocer aspectos relacionados a la estructura / funcionamiento / desarrollo de la familia . A partir de esa evaluacion integral fue posible , junto con sus integrantes , proponer intervenciones como orientaciones sobre la enfermedad falciforme / tratamiento y sesiones de musicoterapia , contribuyendo para socializacion y mejoria en el ambiente familiar, ademas de relajamiento y reduccion de la ansiedad . Conclusion : la atencion domiciliaria fue capaz de proporcionar soporte y de fortalecer cada familia , dentro de su especificidad . Descriptores : Familia; Anemia de Celulas Falciformes ; Salud del Adolescente , Enfermeria; Adolescente. Normal 0 21 false false false PT-BR X-NONE X-NONE /* Style Definitions */ table.MsoNormalTable {mso-style-name:Tabela normal; mso-tstyle-rowband-size:0; mso-tstyle-colband-size:0; mso-style-noshow:yes; mso-style-priority:99; mso-style-qformat:yes; mso-style-parent:; mso-padding-alt:0cm 5.4pt 0cm 5.4pt; mso-para-margin:0cm; mso-para-margin-bottom:.0001pt; mso-pagination:widow-orphan; font-size:11.0pt; font-family:Calibri,sans-serif; mso-ascii-font-family:Calibri; mso-ascii-theme-font:minor-latin; mso-fareast-font-family:Times New Roman; mso-fareast-theme-font:minor-fareast; mso-hansi-font-family:Calibri; mso-hansi-theme-font:minor-latin; mso-bidi-font-family:Times New Roman; mso-bidi-theme-font:minor-bidi;}
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How this classification was reachedexpand
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.002 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.000 | 0.000 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.000 | 0.000 |
| Research integrity | 0.000 | 0.000 |
| Insufficient payload (model declined to judge) | 0.000 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one teacher head, not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".