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Record W3173223243 · doi:10.1001/jama.2021.9941

Guidelines for Reporting Trial Protocols and Completed Trials Modified Due to the COVID-19 Pandemic and Other Extenuating Circumstances

2021· article· en· W3173223243 on OpenAlexafffund
Aaron Orkin, Peter Gill, Davina Ghersi, Lisa Campbell, Richard Emsley, Philippe Gabríel Steg, Charles Weijer, John Simes, Tanja Rombey, Hywel C Williams, Janet Wittes, David Moher, Yvette L. Kasamon, Kenneth Getz, Sally Hopewell, Kay Dickersin, Taixiang Wu, Ana Patricia Ayala, Sabine Calleja, Isabelle Boutron, Joseph S. Ross, Robert Golub, Karim Khan, Cindy Mulrow, Nandi Siegfried, Joerg Heber, Naomi Lee, Pamela Reed Kearney, Rhoda K. Wanyenze, Asbjørn Hróbjartsson, Rebecca J. Williams, Nita Bhandari, Peter Jüni, An‐Wen Chan, Véronique Kiermer, Jacqueline Corrigan‐Curay, John Concato

Bibliographic record

VenueJAMA · 2021
Typearticle
Languageen
FieldDecision Sciences
TopicMeta-analysis and systematic reviews
Canadian institutionsUniversity of OttawaInstitute of Musculoskeletal Health and ArthritisWomen's College HospitalCanadian Institutes of Health ResearchRobarts Clinical TrialsOttawa HospitalSt. Michael's HospitalWestern UniversityUniversity of TorontoSickKids FoundationHospital for Sick ChildrenPublic Health Ontario
FundersInstitute of Musculoskeletal Health and ArthritisNational Heart, Lung, and Blood InstituteU.S. National Library of MedicineDepartment of Medicine, University of TorontoMedical Research CouncilCanadian Institutes of Health ResearchAgency for Healthcare Research and QualityServierBiosensors International GroupSyddansk UniversitetIdorsia PharmaceuticalsUniversity of TorontoSouth African Medical Research CouncilCancer AustraliaLawrence Berkeley National LaboratoryMyoKardiaNovo NordiskNational Institute for Health and Care ResearchMedicines CompanyNational Health and Medical Research CouncilAstraZenecaAmarin CorporationNational Institutes of HealthRegeneron PharmaceuticalsBristol-Myers SquibbEli Lilly and CompanyLaura and John Arnold FoundationRTI InternationalPfizerBiogenMerck KGaASanofiAmgen
KeywordsMedicineCoronavirus disease 2019 (COVID-19)Pandemic2019-20 coronavirus outbreakSevere acute respiratory syndrome coronavirus 2 (SARS-CoV-2)Clinical trialCoronavirus InfectionsBetacoronavirusMEDLINEVirologyOutbreakPathologyLaw

Abstract

fetched live from OpenAlex

Importance: Extenuating circumstances can trigger unplanned changes to randomized trials and introduce methodological, ethical, feasibility, and analytical challenges that can potentially compromise the validity of findings. Numerous randomized trials have required changes in response to the COVID-19 pandemic, but guidance for reporting such modifications is incomplete. Objective: As a joint extension for the CONSORT and SPIRIT reporting guidelines, CONSERVE (CONSORT and SPIRIT Extension for RCTs Revised in Extenuating Circumstances) aims to improve reporting of trial protocols and completed trials that undergo important modifications in response to extenuating circumstances. Evidence: A panel of 37 international trial investigators, patient representatives, methodologists and statisticians, ethicists, funders, regulators, and journal editors convened to develop the guideline. The panel developed CONSERVE following an accelerated, iterative process between June 2020 and February 2021 involving (1) a rapid literature review of multiple databases (OVID Medline, OVID EMBASE, and EBSCO CINAHL) and gray literature sources from 2003 to March 2021; (2) consensus-based panelist meetings using a modified Delphi process and surveys; and (3) a global survey of trial stakeholders. Findings: The rapid review yielded 41 673 citations, of which 38 titles were relevant, including emerging guidance from regulatory and funding agencies for managing the effects of the COVID-19 pandemic on trials. However, no generalizable guidance for all circumstances in which trials and trial protocols might face unanticipated modifications were identified. The CONSERVE panel used these findings to develop a consensus reporting guidelines following 4 rounds of meetings and surveys. Responses were received from 198 professionals from 34 countries, of whom 90% (n = 178) indicated that they understood the concept definitions and 85.4% (n = 169) indicated that they understood and could use the implementation tool. Feedback from survey respondents was used to finalize the guideline and confirm that the guideline's core concepts were applicable and had utility for the trial community. CONSERVE incorporates an implementation tool and checklists tailored to trial reports and trial protocols for which extenuating circumstances have resulted in important modifications to the intended study procedures. The checklists include 4 sections capturing extenuating circumstances, important modifications, responsible parties, and interim data analyses. Conclusions and Relevance: CONSERVE offers an extension to CONSORT and SPIRIT that could improve the transparency, quality, and completeness of reporting important modifications to trials in extenuating circumstances such as COVID-19.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.327
metaresearch head score (Gemma)0.793
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch, Scholarly communication
Consensus categoriesMetaresearch
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: none
Teacher disagreement score0.655
Threshold uncertainty score0.999

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.3270.793
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0040.001
Bibliometrics0.0000.001
Science and technology studies0.0000.000
Scholarly communication0.0020.000
Open science0.0010.000
Research integrity0.0000.000
Insufficient payload (model declined to judge)0.0010.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.959
GPT teacher head0.666
Teacher spread0.292 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; both teacher heads agree on what is shown here.

Study designNot applicable
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations313
Published2021
Admission routes2
Has abstractyes

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