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Record W3209849978 · doi:10.2196/12262

Design and Rationale of the National Tunisian Registry of Heart Failure (NATURE-HF): Protocol for a Multicenter Registry Study

2019· article· en· W3209849978 on OpenAlexvenueno aff
Leïla Abid, Ikram Kammoun, Manel Ben Halima, S. Charfeddine, H. Ben Slima, Meriem Drissa, Khadija Mzoughi, Dorra Mbarek, Leila Riahi, Saoussen Antit, Afef Ben Halima, Wejdène Ouechtati, E. Allouche, M. Mechri, Chedi Yousfi, O. Abid, Khaled Ezzaouia, Imen Gtif, Sana Ouali, Triki Feten, Sonia Hamdi, S. Boudiche, M. Chebbi, M Hentati, A. Farah, Habib Triki, H. Ghardallou, Haythem Raddaoui, Sofien Zayed, Fadwa Omri, A. Zouari, Zine Ben Ali, A. Najjar, Houssem Thabet, Mouna Chaker, Samar Mohamed, Marwa Chouaieb, A. Ben Jemâa, Haythem Tangour, Yassmine Kammoun, Mahmoud Cheikh Bouhlel, Seifeddine Azaiez, Rim Letaief, Salah Maskhi, Amri Amri, Hela Naanaa, Raoudha Othmani, Iheb Chahbani, Houcine Zargouni, Syrine Hizem, Mokdad Ayari, Ines Ben Ameur, Ali Gasmi, N. Ben Halima, Habib Haouala, Essia Boughzéla, Lilia Zakhama, Soraya Ben Youssef, Wided Nasraoui, Mohamed Rachid Boujnah, Nadia Barakett, S. Kraïem, Habiba Drissa, A Khalfallah, Habib Gamra, Salem Kachboura, L. Bezdah, H. Baccar, Sami Milouchi, Wissem Sdiri, S. Ben Omrane, Salem Abdesselem, Alifa Kanoun, Karima Hezbri, Faı̈ez Zannad, Alexandre Mebazaa, S. Kammoun, Mohamed Sami Mourali, Faouzi Addad

Bibliographic record

VenueJMIR Research Protocols · 2019
Typearticle
Languageen
FieldMedicine
TopicHeart Failure Treatment and Management
Canadian institutionsnot available
Fundersnot available
KeywordsMedicineHeart failureCoronary artery diseaseClinical trialLife expectancyPopulationStroke (engine)Cause of deathSudden cardiac deathDiseaseInternal medicine

Abstract

fetched live from OpenAlex

BACKGROUND: The frequency of heart failure (HF) in Tunisia is on the rise and has now become a public health concern. This is mainly due to an aging Tunisian population (Tunisia has one of the oldest populations in Africa as well as the highest life expectancy in the continent) and an increase in coronary artery disease and hypertension. However, no extensive data are available on demographic characteristics, prognosis, and quality of care of patients with HF in Tunisia (nor in North Africa). OBJECTIVE: The aim of this study was to analyze, follow, and evaluate patients with HF in a large nation-wide multicenter trial. METHODS: A total of 1700 patients with HF diagnosed by the investigator will be included in the National Tunisian Registry of Heart Failure study (NATURE-HF). Patients must visit the cardiology clinic 1, 3, and 12 months after study inclusion. This follow-up is provided by the investigator. All data are collected via the DACIMA Clinical Suite web interface. RESULTS: At the end of the study, we will note the occurrence of cardiovascular death (sudden death, coronary artery disease, refractory HF, stroke), death from any cause (cardiovascular and noncardiovascular), and the occurrence of a rehospitalization episode for an HF relapse during the follow-up period. Based on these data, we will evaluate the demographic characteristics of the study patients, the characteristics of pathological antecedents, and symptomatic and clinical features of HF. In addition, we will report the paraclinical examination findings such as the laboratory standard parameters and brain natriuretic peptides, electrocardiogram or 24-hour Holter monitoring, echocardiography, and coronarography. We will also provide a description of the therapeutic environment and therapeutic changes that occur during the 1-year follow-up of patients, adverse events following medical treatment and intervention during the 3- and 12-month follow-up, the evaluation of left ventricular ejection fraction during the 3- and 12-month follow-up, the overall rate of rehospitalization over the 1-year follow-up for an HF relapse, and the rate of rehospitalization during the first 3 months after inclusion into the study. CONCLUSIONS: The NATURE-HF study will fill a significant gap in the dynamic landscape of HF care and research. It will provide unique and necessary data on the management and outcomes of patients with HF. This study will yield the largest contemporary longitudinal cohort of patients with HF in Tunisia. TRIAL REGISTRATION: ClinicalTrials.gov NCT03262675; https://clinicaltrials.gov/ct2/show/NCT03262675. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/12262.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.097
metaresearch head score (Gemma)0.063
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: none
GenreCandidate signal: Protocol · Consensus signal: Protocol
Teacher disagreement score0.097
Threshold uncertainty score0.515

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.0970.063
Meta-epidemiology (narrow)0.0050.003
Meta-epidemiology (broad)0.0050.004
Bibliometrics0.0040.005
Science and technology studies0.0050.003
Scholarly communication0.0040.003
Open science0.0040.003
Research integrity0.0040.006
Insufficient payload (model declined to judge)0.0500.014

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.195
GPT teacher head0.528
Teacher spread0.333 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

The models applied no category: nothing in the taxonomy fit this work.
Study designObservational
Domainnot available
GenreProtocol

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations3
Published2019
Admission routes1
Has abstractyes

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