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Record W4225412313 · doi:10.24908/iqurcp15443

Missing Race-Based Data in Pediatrics: Why and Where

2022· article· en· W4225412313 on OpenAlexafffundvenueabout
Noah Boroditsky

Bibliographic record

VenueInquiry Queen s Undergraduate Research Conference Proceedings · 2022
Typearticle
Languageen
FieldHealth Professions
TopicChild and Adolescent Health
Canadian institutionsQueen's University
FundersBC Children's Hospital
KeywordsEthnic groupMedicineHealth careMEDLINEFamily medicineRacismHealth equityData extractionDocumentationPublic healthNursingPolitical science

Abstract

fetched live from OpenAlex

Background: Racism, the differential treatment of people based on their perceived racial or ethnic identity, causes health inequities between racial groups. An absence of race or ethnicity data (RED) in healthcare makes evaluation and awareness of health inequalities caused by systemic racism challenging. Current literature is scarce on collection methods of RED in healthcare globally. Methods: English language references and grey literature published in MEDLINE, Embase, and relevant sources between January 1, 2000, and July 3, 2021, were identified after consultation with a research librarian. Abstracts were evaluated for inclusion and exclusion criteria. Thematic analysis and data extraction were conducted after full-body reviews. Studies included in the final review focused on participants ≤18, were based in a healthcare facility and collected race or ethnicity data. Results: A total of 1,193 references were collected in the initial search (296 MEDLINE, 894 Embase, 3 other). After a full-body evaluation, 28 references were retained and included in the final analysis. Articles were set in the United States (n=7), Canada (n=5), Australia (n=4), and the United Kingdom (n=1). RED was collected using Electronic Medical Records (n=8), Electronic Health Records (n=6), collaborative studies (n=2), Patient Chart Documentation (n=1), and National Emergency Services Information System (NEMSIS) data (n=1). RED was collected in Tertiary care centers (n=8), Secondary care centers (n=1), a Primary care center (n=1), and a Quaternary care center (n=1). Racial and ethnic categories discussed in the literature included: White, Hispanic, Black, Indigenous, Aboriginal, and Asian. Six articles explicitly reported a need for more RED collection. Conclusion: Collecting RED is critical to understanding health inequities and the impacts of racism in healthcare. Globally, there is limited information on RED collection. We strongly endorse the recommendation of the BC Office of Human Rights Commissioner on the collection of RED in all age groups, including pediatrics. Capturing RED respectfully, meaningfully, and accurately across all groups will help identify potential associations, barriers, and inequities in health outcomes, helping to mitigate and eliminate systemic racism in healthcare.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.127
metaresearch head score (Gemma)0.447
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch
Consensus categoriesnone
DomainCandidate signal: Reporting · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: none
Teacher disagreement score0.873
Threshold uncertainty score0.672

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.1270.447
Meta-epidemiology (narrow)0.0010.002
Meta-epidemiology (broad)0.0040.003
Bibliometrics0.0080.017
Science and technology studies0.0020.007
Scholarly communication0.0090.016
Open science0.0040.005
Research integrity0.0060.006
Insufficient payload (model declined to judge)0.0060.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.241
GPT teacher head0.476
Teacher spread0.234 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.

Study designObservational
DomainReporting
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

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Citations0
Published2022
Admission routes4
Has abstractyes

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