37th Meeting of the Canadian Congress of Neurological Sciences
Bibliographic record
Abstract
Background: The measurement of clinical outcome in pediatric hydrocephalus frequently ignores the substantial effect that the condition can have on a child's physical, emotional, cognitive and social health.Therefore, we developed the first health status outcome measure (HSOM) designed specifically for children with hydrocephalus.This was designed as a simple questionnaire to be completed by the children's parents.Methods: The standardized steps in the development of a HSOM were followed.Item generation involved health professionals and focus groups with parents of children with hydrocephalus.This created a comprehensive list of 187 unique health status items.To reduce this list, questionnaires were sent to 70 sets of parents to assess what they felt were the most important of these health issues.The 53 most important items were then selected to represent the following health domains: physical, social, emotional and cognitive.The 53-item questionnaire was then tested for reliability and construct validity, in another cohort of 75 sets of parents, against the following independent measures of specific components of health: Health Utilities Index (HUI-2), Wide Range Achievement Reading Test (WRAT), Strengths and Difficulties Questionnaires (SDQ), Functional Independence Measure for Children (WeeFIM), and global health ratings by surgeons (GHRS).Results: The multidimensional 53-item HSOM took approximately 10-15 minutes for the parents to complete and demonstrated excellent test-retest reliability (0.91, 95% confidence interval (CI) 0.85-0.96),inter-rater reliability (0.87, 95% CI 0.76-0.93),and internal consistency (Cronbach's alpha 0.94).Construct validity was demonstrated by very good Pearson correlations of domain scores with their respective independent measures: HUI-2 (0.81), WRAT (0.58), SDQ (0.70), WeeFIM (0.88), GHRS (0.68).Conclusions: A HSOM for children with hydrocephalus has been developed and has demonstrated excellent reliability and validity properties.This will provide a valuable measurement tool for a wide range of clinical research projects in pediatric hydrocephalus comparing long-term outcome in different groups of patients.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.002 |
| Meta-epidemiology (narrow) | 0.001 | 0.000 |
| Meta-epidemiology (broad) | 0.001 | 0.001 |
| Bibliometrics | 0.002 | 0.001 |
| Science and technology studies | 0.003 | 0.001 |
| Scholarly communication | 0.003 | 0.001 |
| Open science | 0.001 | 0.002 |
| Research integrity | 0.003 | 0.003 |
| Insufficient payload (model declined to judge) | 0.252 | 0.078 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".