‘We want our own data!’: building Black community accountability in the collection of health data using a Black emancipatory action research approach
Bibliographic record
Abstract
Community accountability is a model through which to redress anti-Black racism in health care and to create community-based participatory research about the health of Black Canadians. This article provides a case example of a study undertaken by a Black community collective in Quebec made up of researchers, activists, service providers, business leaders and their allies who sought community accountability in making visible the impact of COVID-19 on local Black communities. The principles articulated within the Black emancipatory action research approach (Akom, 2011) are used to ground an analysis of our research-activist process in order to illuminate how knowledge gained through the collection of data can be used to help inform Black communities about the realities, needs and concerns of their members, to advocate for rights and entitlements, and to work towards community accountability in research that empowers Black communities, both in Quebec and elsewhere.
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How this classification was reachedexpand
Direct model labels (unvalidated)
Per-model category and study-design labels from the labeling rounds. They are machine output, unvalidated, and the disagreement between models ships as data. No study design here is MEDLINE-validated yet.
| Model arm | Categories | Study design | Confidence |
|---|---|---|---|
| gemma | no category Domain: not available · Genre: Empirical About the Canadian research system: no · About a Canadian topic: no | Qualitative | low |
| gpt | MetaresearchScience and technology studies Domain: Methods · Genre: Empirical About the Canadian research system: no · About a Canadian topic: no | Qualitative | low |
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.397 | 0.215 |
| Meta-epidemiology (narrow) | 0.001 | 0.001 |
| Meta-epidemiology (broad) | 0.001 | 0.001 |
| Bibliometrics | 0.005 | 0.005 |
| Science and technology studies | 0.065 | 0.092 |
| Scholarly communication | 0.025 | 0.016 |
| Open science | 0.006 | 0.030 |
| Research integrity | 0.007 | 0.017 |
| Insufficient payload (model declined to judge) | 0.003 | 0.001 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedLabeled directly by 2 models reading the full record.
The models disagree on parts of this classification; every voice is preserved in the section at the end of the page.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".