Parental Satisfaction Towards Autism Spectrum Disorder Diagnostic Assessment Process for Children 12-39 Months.
Bibliographic record
Abstract
Abstract BACKGROUND: To address lengthy delays in accessing diagnostic assessment for Autism Spectrum Disorder (ASD), our ASD services underwent a review of the service model in 2013-2014. In addition to establishing a formal ASD Diagnostic Clinic, the diagnostic evaluation process for children 12-39 months was re-designed. A major implemented change as part of our diagnostic process was the Pre- and Post-diagnosis parent information sessions. OBJECTIVES: To assess the satisfaction level for parents of children being evaluated through our new ASD diagnostic process for children 12-39 months. DESIGN/METHODS: This evaluation was done through two different surveys: 1) a validated, standardized telephone survey (average 15 minutes) was administered by an experienced nurse to parents whose child was diagnosed with ASD (January 2014-June 2015) based on the new ASD diagnostic process. Parents were asked to retrospectively evaluate their experience undergoing the new diagnostic assessment process; 2) a subgroup of parents completed a written survey to evaluate the Pre- and Post-diagnosis parent information sessions (of note: survey was given at the end of these educational sessions). RESULTS: 1) Telephone questionnaire: a total of 68/96 parents were surveyed (71% overall response rate; >90% mothers). Percentage of strongly agree/agree answers were obtained to these statements: a) better awareness of your child’s needs: 78%; b) receiving useful ASD information and educational materials: 90% c) overall process met needs: 77%; d) overall experience: 80%; e) parents having early intervention support since the ASD diagnostic assessment given to their child: 91%; 2) In regards to the educational sessions (Pre-diagnosis ([n=44] & Post ASD Diagnosis [n=33]), the responses to questions on the delivery, content and materials presented revealed >90% level of satisfaction. Challenges to attending theses educational sessions were less than we anticipated. CONCLUSION: The level of satisfaction to our ‘new’ ASD diagnostic process for children 12-39 months, as reported by parents, was very good. Parents felt the Pre- & Post-educational sessions were positive and valuable. This Quality Improvement initiative, redesigning the ASD diagnostic assessment process, has been validated by families.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.005 | 0.020 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.001 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.001 | 0.000 |
| Scholarly communication | 0.001 | 0.001 |
| Open science | 0.000 | 0.001 |
| Research integrity | 0.000 | 0.001 |
| Insufficient payload (model declined to judge) | 0.003 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".