Ethics without IRB, is that possible? The case study of participatory sessions with ASD Children in Mexico
Bibliographic record
Abstract
Research involving participatory design with children necessarily implies a careful review of the research methods to ensure participants’ safety; However, in Latin America may be different than in the Global North countries. Over the past 13 years, we have partnered with a school-clinic in Mexico that specializes in assisting children with autism. During this time, we designed, developed, and assessed UbiComp technology to assist in various stages of a child's therapy cycle. We have been collaborating with the school-stakeholders such as children and young adults with autism, parents, teachers, psychologists, and therapists, including them in all the phases of the projects. In this paper, we reflect on our experiences at this school-clinic, discussing the formality and ethics when conducting research. We close by presenting the implications we have learned while conducting research with this population.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.050 | 0.057 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.000 |
| Bibliometrics | 0.001 | 0.001 |
| Science and technology studies | 0.013 | 0.011 |
| Scholarly communication | 0.006 | 0.003 |
| Open science | 0.001 | 0.004 |
| Research integrity | 0.003 | 0.004 |
| Insufficient payload (model declined to judge) | 0.003 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".