MétaCan
Menu
Back to cohort
Record W4387907836 · doi:10.1002/mdc3.13909

An Empirical Comparison of Commonly Used Universal Rating Scales for Dystonia

2023· article· en· W4387907836 on OpenAlex
Deniz Boz, Gamze Kilic‐Berkmen, Joel S. Perlmutter, Scott A. Norris, Laura J. Wright, Christine Klein, Tobias Bäumer, Sebastian Löns, Jeanne Feuerstein, Abhimanyu Mahajan, Aparna Wagle Shukla, Irene A. Malaty, Mark S. LeDoux, William G. Ondo, Alexander Pantelyat, Samuel Frank, Rachel Saunders‐Pullman, Hyder A. Jinnah

Why this work is in the frame

A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.

aboutThe title or abstract carries a Canadian signal from the geographic lexicon.
no affNo Canadian affiliation: this work is invisible to an affiliation-only frame.
No Canadian affiliation. An affiliation-only frame, the usual design, would never have seen this work. It is one of the works that make the case for inverting the frame.

Bibliographic record

VenueMovement Disorders Clinical Practice · 2023
Typearticle
Languageen
FieldMedicine
TopicBotulinum Toxin and Related Neurological Disorders
Canadian institutionsnot available
FundersNational Center for Research ResourcesNational Institute on AgingParkinsonfondenAllerganNational Institutes of HealthACADIA PharmaceuticalsAcorda TherapeuticsParkinson Study GroupCleveland ClinicIpsenWashington University in St. LouisNational Institute of Neurological Disorders and StrokeMerz PharmaceuticalsBundesministerium für Bildung und ForschungTeva Pharmaceutical IndustriesRevanceAmerican Parkinson Disease AssociationUS WorldMedsDystonia CoalitionNational Center for Advancing Translational SciencesTourette Association of AmericaBiogenRestless Legs Syndrome Foundation
KeywordsDystoniaRating scalePsychologyPhysical medicine and rehabilitationCognitive psychologyMedicineNeuroscienceDevelopmental psychology

Abstract

fetched live from OpenAlex

ABSTRACT Background There are several widely used clinical rating scales for documenting the severity and distribution of various types of dystonia. Objectives The goal of this study was to evaluate the performance of the most commonly used scales in a large group of adults with the most common types of isolated dystonia. Methods Global Dystonia Rating Scale (GDRS) and the Burke‐Fahn‐Marsden Dystonia Rating Scale (BFM) scores were obtained for 3067 participants. Most had focal or segmental dystonia, with smaller numbers of multifocal or generalized dystonia. These scales were also compared for 209 adults with cervical dystonia that had Toronto Western Spasmodic Torticollis Rating Scale (TWSTRS) scores and 210 adults with blepharospasm that had Blepharospasm Severity Scale (BSRS) scores. Results There were strong correlations between the GDRS and BFM total scores ( r = 0.79) and moderate correlations for their sub scores ( r > 0.5). Scores for both scales showed positive skew, with an overabundance of low scores. BFM sub‐scores were not normally distributed, due to artifacts caused by the provoking factor. Relevant sub‐scores of the GDRS and BFM also showed moderate correlations with the TWSTRS ( r > 0.5) for cervical dystonia and the BSRS ( r > 0.5) for blepharospasm. Conclusions The BFM is more widely used than the GDRS, but these results suggest the GDRS may be preferable for focal and segmental dystonias. The overabundance of very low scores for both scales highlights challenges associated with discriminating very mild dystonia from other abnormal movements or variants of normal behavior.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.002
metaresearch head score (Gemma)0.004
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesnone
Consensus categoriesnone
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Observational · Consensus signal: Observational
GenreCandidate signal: Empirical · Consensus signal: Empirical
Teacher disagreement score0.311
Threshold uncertainty score0.770

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0020.004
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0010.000
Bibliometrics0.0000.001
Science and technology studies0.0000.000
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0000.001
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.125
GPT teacher head0.495
Teacher spread0.370 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it