Together Stronger: A creative arts program for children of a parent with young onset dementia
Bibliographic record
Abstract
Abstract Background Working age individuals who develop dementia experience significant challenges to their ability to keep working. This has wide ranging impacts not only on the individual but also for their families, many of which include young children. Presently there is limited knowledge of the impact on children of having a parent with YOD or of resources to support these children. Method Eight children aged between 8‐19 took part in Together Stronger, a community based creative arts programme for children of a parent with young onset dementia. Hosted by the Museum of English Rural Life (MERL) the program ran in a hybrid format over eight bi‐weekly sessions. Activities included willow weaving, storytelling with museum artefacts, and baking together. The impact on the children’s wellbeing and social engagement was assessed using mixed methods. Result Qualitative results suggest an overall improvement in the wellbeing of the children whilst quantitative wellbeing results were inconclusive. The children were overwhelmingly positive about the creative activities and wished the group would continue. They particularly liked that the group did not focus on their parent’s dementia but instead was about creative activities. The children enjoyed the social aspect and appreciated the opportunity to spend time with other people in the same situation. Conclusion This community‐based project for children of parents with young‐onset dementia shows promising results in terms of feasibility, acceptability and impact. Participants' feedback on the structure and contents of the sessions provides useful recommendations regarding future service provision.
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.001 | 0.002 |
| Meta-epidemiology (narrow) | 0.001 | 0.000 |
| Meta-epidemiology (broad) | 0.000 | 0.001 |
| Bibliometrics | 0.000 | 0.000 |
| Science and technology studies | 0.002 | 0.001 |
| Scholarly communication | 0.001 | 0.001 |
| Open science | 0.001 | 0.003 |
| Research integrity | 0.001 | 0.001 |
| Insufficient payload (model declined to judge) | 0.008 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".