The communication needs of people with primary progressive aphasia and their family: a scoping review
Why this work is in the frame
A frame that forgets how it found something cannot be audited. These are the routes that admitted this work.
Bibliographic record
Abstract
Language-led dementias, collectively called primary progressive aphasia (PPA), are caused by relatively focal damage to the language networks of the brain. The progressive language decline of PPA is associated with negative effects on quality of life; depression, hopelessness, and grief; and higher levels of economic burden for the individuals and their families. Although communication impairments are the primary symptoms at onset, people with PPA often receive minimal to no support for their communication needs. This scoping review aimed to explore what is currently known within the existing peer-reviewed research literature about the communication needs of people with PPA and their family members, from the perspectives of people with PPA, their family, and speech-language pathologists. A secondary aim was to identify the research approaches used in the included studies. Four databases were searched. Twelve articles met the inclusion criteria. Analysis of the eligible studies revealed eight broad areas of communication need for people with PPA: Language; Social communication; Everyday communication; Conversation; Social connection; Communication with people other than the family member; Support and coping with communication difficulties; and Education and information. The latter five areas were also identified for family members: Conversation; Social connection; Communication with people other than the family member; Support and coping with the communication difficulties of the person with PPA; and Education and information. The findings provide an initial overview of communication needs for this population and point to key avenues for future research in this area.
Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.
Full frame distilled prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.
Codex and Gemma teacher scores by category
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.000 | 0.000 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.002 | 0.000 |
| Bibliometrics | 0.000 | 0.001 |
| Science and technology studies | 0.000 | 0.001 |
| Scholarly communication | 0.000 | 0.000 |
| Open science | 0.001 | 0.000 |
| Research integrity | 0.000 | 0.001 |
| Insufficient payload (model declined to judge) | 0.000 | 0.000 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it