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Record W4392606665 · doi:10.1016/j.gimo.2024.101776

P862: How to conduct equitable genetics research to include underserved populations: A systematic review of best practices

2024· review· en· W4392606665 on OpenAlexaff
Vernie Aguda, Sonya Grewal, Arielle Nsenga, Daena Hirjikaka, Saumeh Saeedi, Emma Reble, Marc Clausen, Charles Law, Francine Holness, Kristal John, Tracy Reece, Aaron Pollett, Aïsha Lofters, Ambreen Sayani, Andrea Eisen, David A. Lightfoot, Harriet Feilotter, Jordan Lerner‐Ellis, Melyssa Aronson, Nav Persaud, Yvonne Bombard

Bibliographic record

VenueGenetics in Medicine Open · 2024
Typereview
Languageen
FieldMedicine
TopicHealth and Medical Research Impacts
Canadian institutionsQueen's UniversityHealth Sciences CentreSunnybrook Health Science CentreWomen's College HospitalUniversity of Toronto
Fundersnot available
KeywordsBest practiceGeneticsBiologyPolitical scienceLaw

Abstract

fetched live from OpenAlex

The genetics community at large has recognized that current data sources and analytical approaches are inherently biased toward individuals of European ancestry. Underrepresentation of genomes from diverse ancestries results in uncertainty about the interpretation of benign vs disease-causing genetic variation leading to a higher rate of inconclusive test results in those populations and risk prediction models that do not transfer across genetic ancestries. Without a genetic diagnosis, access to personalized treatment and management options, as well as cascade testing for relatives, is restricted, often in populations who are already under-referred to genetic services.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.034
metaresearch head score (Gemma)0.277
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch, Meta-epidemiology (narrow), Research integrity
Consensus categoriesMetaresearch
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Systematic review · Consensus signal: Systematic review
GenreCandidate signal: Review · Consensus signal: Review
Teacher disagreement score0.342
Threshold uncertainty score1.000

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0340.277
Meta-epidemiology (narrow)0.0010.000
Meta-epidemiology (broad)0.0070.000
Bibliometrics0.0020.005
Science and technology studies0.0000.000
Scholarly communication0.0000.000
Open science0.0020.003
Research integrity0.0000.002
Insufficient payload (model declined to judge)0.0000.001

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.922
GPT teacher head0.719
Teacher spread0.203 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; both teacher heads agree on what is shown here.

Study designSystematic review
Domainnot available
GenreReview

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations0
Published2024
Admission routes1
Has abstractyes

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