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Record W4394772216 · doi:10.5376/gmo.2024.15.0002

Ethical Issues in Personalized Medicine: Privacy, Consent, and Data Sharing

2024· article· en· W4394772216 on OpenAlexvenueno aff
Wei Wang

Bibliographic record

VenueGMO Biosafety Research · 2024
Typearticle
Languageen
FieldMedicine
TopicEthics in Clinical Research
Canadian institutionsnot available
Fundersnot available
KeywordsData sharingInformed consentStandardizationEngineering ethicsPersonalized medicineLegitimacyData Protection Act 1998Internet privacyInformation privacyEthical issuesPrecision medicineMedicinePolitical scienceComputer scienceAlternative medicineLawEngineering

Abstract

fetched live from OpenAlex

This study explores the ethical issues involved in personalized medicine, focusing primarily on privacy, consent, and data sharing. First, the background and importance of the development of personalized medicine are introduced, followed by a detailed analysis of the ethical challenges in this field, including privacy, consent, and data sharing. Regarding consent issues, the article discusses the definition and requirements of informed consent, obstacles and challenges in the consent process, and future-oriented consent models. In terms of data sharing, it focuses on the benefits and risks of sharing data, anonymization and de-identification in shared data, data ownership and control, and ethical considerations for international data sharing. Finally, the importance of addressing ethical issues in personalized medicine is emphasized, and future research directions and suggestions are proposed. By comprehensively analyzing ethical issues in personalized medicine, this article aims to provoke deep thinking about medical ethics, promote the standardization and legitimacy of medical practice, and ensure the effective protection of patient rights and public interests.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.050
metaresearch head score (Gemma)0.098
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch, Science and technology studies, Research integrity, Insufficient payload (model declined to judge)
Consensus categoriesMetaresearch
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Theoretical or conceptual · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: none
Teacher disagreement score0.906
Threshold uncertainty score1.000

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0500.098
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0010.000
Bibliometrics0.0010.001
Science and technology studies0.0000.004
Scholarly communication0.0000.000
Open science0.0010.004
Research integrity0.0010.013
Insufficient payload (model declined to judge)0.0010.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.839
GPT teacher head0.714
Teacher spread0.125 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; both teacher heads agree on what is shown here.

Study designTheoretical or conceptual
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations0
Published2024
Admission routes1
Has abstractyes

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