MP64-01 GENITOURINARY AND SEXUAL WELLBEING-RELATED PATIENT REPORTED OUTCOME MEASURES USED IN GENDER-AFFIRMING CARE: AN ANALYSIS OF READABILITY, COMPREHENSIVENESS AND APPROPRIATENESS
Bibliographic record
Abstract
You have accessJournal of UrologyReconstruction: External Genitalia and Urotrauma (Including Transgender Surgery and Traumatic Fistula) II (MP64)1 May 2024MP64-01 GENITOURINARY AND SEXUAL WELLBEING-RELATED PATIENT REPORTED OUTCOME MEASURES USED IN GENDER-AFFIRMING CARE: AN ANALYSIS OF READABILITY, COMPREHENSIVENESS AND APPROPRIATENESS Meg Quint, Sophia Hu, Marie-Therese Valovska, Devin O'Brien-Coon, Geolani Dy, Andrea Pusic, Manjar Kaur, and William Boysen Meg QuintMeg Quint , Sophia HuSophia Hu , Marie-Therese ValovskaMarie-Therese Valovska , Devin O'Brien-CoonDevin O'Brien-Coon , Geolani DyGeolani Dy , Andrea PusicAndrea Pusic , Manjar KaurManjar Kaur , and William BoysenWilliam Boysen View All Author Informationhttps://doi.org/10.1097/01.JU.0001008824.92877.7f.01AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract INTRODUCTION AND OBJECTIVE: Patient-reported outcome measures (PROMs) measure how patients feel and function. Several PROMs assessing genitourinary function and sexual well-being have been used in individuals seeking genital gender-affirming care. To be useful in clinical care and research, PROMs should be easy to understand, comprehensive, and relevant. The goal of this study was to provide the evaluate the readability and comprehensiveness of genitourinary and sexual health-related PROMs used in gender-affirming care. METHODS: Common PROMs that measure genitourinary and sexual health-related outcomes in gender-affirming care literature were identified from five recent systematic reviews. Readability analysis was completed at the level of individual items and scale using established readability assessment tools, including Flesch Kincaid Grade Level (FKGL), Gunning Fog Score (GF), Coleman Liau Index (CLI), and Simple Measure of Gobbledygook (SMOG) Index. The concepts measured by the PROMs were evaluated for comprehensiveness. RESULTS: 16 PROMs were included, of which 12 assessed genitourinary outcomes and 4 assessed sexual health outcomes. A total of 5 genitourinary domains and 3 sexual health domains were identified during concept mapping. Readability analysis showed a median PROM grade level of 9.0 and 11.4 in genitourinary and sexual PROMs, respectively (Figure 1). The Birmingham Bowel and Urinary Symptoms Questionnaire was the most readable PROM (6.5), and the Female Sexual Function Index was least readable PROM (14.9). No single PROM had items from all domains. Multiple PROMs contained double-barreled items and or used outdated terminology. CONCLUSIONS: Most PROMs used in the genital gender-affirming literature failed to meet the readability recommendations (i.e., Grade 6 or less) and were culturally unfit for use in transgender and gender-diverse individuals. While PROMs captured important concepts on an aggregate level, none were specifically designed or comprehensive for a transgender/gender-diverse population. Validated gender-affirming care-specific PROMs that are comprehensible, comprehensive, and relevant are urgently needed to center TGD patient needs, voices, and experiences. Download PPT Source of Funding: Manraj Kaur is supported by the Canadian Institute of Health Research Fellowship Award (2020-24) © 2024 by American Urological Association Education and Research, Inc.FiguresReferencesRelatedDetails Volume 211Issue 5SMay 2024Page: e1040 Advertisement Copyright & Permissions© 2024 by American Urological Association Education and Research, Inc.Metrics Author Information Meg Quint More articles by this author Sophia Hu More articles by this author Marie-Therese Valovska More articles by this author Devin O'Brien-Coon More articles by this author Geolani Dy More articles by this author Andrea Pusic More articles by this author Manjar Kaur More articles by this author William Boysen More articles by this author Expand All Advertisement PDF downloadLoading ...
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How this classification was reachedexpand
Full frame machine prediction
Teacher imitationNot calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.
Distilled classifier scores by category (both heads)
| Category | Codex | Gemma |
|---|---|---|
| Metaresearch | 0.012 | 0.082 |
| Meta-epidemiology (narrow) | 0.000 | 0.000 |
| Meta-epidemiology (broad) | 0.001 | 0.001 |
| Bibliometrics | 0.003 | 0.003 |
| Science and technology studies | 0.001 | 0.000 |
| Scholarly communication | 0.002 | 0.002 |
| Open science | 0.001 | 0.003 |
| Research integrity | 0.001 | 0.002 |
| Insufficient payload (model declined to judge) | 0.047 | 0.009 |
Machine scores (provisional)
The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.
Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.
score_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from itClassification
machine, unvalidatedMachine predicted; a candidate call from one source (direct Gemma or distilled Codex), not a consensus.
How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".