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Record W4396996299 · doi:10.1016/j.jemep.2024.100988

Regulating mobile health research in Canada: Public trust and public participation

2024· article· en· W4396996299 on OpenAlexafffundabout
Ma’n H. Zawati, Michael Lang

Bibliographic record

VenueEthics Medicine and Public Health · 2024
Typearticle
Languageen
FieldMedicine
TopicEthics in Clinical Research
Canadian institutionsMcGill University
FundersFonds de Recherche du Québec - Santé
KeywordsPublic healthPublic participationPublic trustPolitical sciencePublic relationsBusinessPublic administrationMedicineNursing

Abstract

fetched live from OpenAlex

Smartphone applications provide unique opportunities for health research. Prospective participants may be recruited, give consent, and may share personal health information with researchers with unparalleled efficiency. Mobile health apps thus have the potential to profoundly alter the way health research is conducted, thereby contributing to more effective and more equitably distributed clinical interventions. But the regulation of this kind of research is uncertain. The absence of regulatory guidance may limit mobile health's promise. The mobile health research landscape in Canada is considered in the context of the existing regulatory framework, academic literature, and current applications. This paper outlines regulatory issues in the Canadian context, suggesting three key issues to which researchers and regulators ought to be attentive to ensure public trust: consent, return of results, and privacy and security. Further consideration of regulatory and ethical issues is needed if mobile health will earn the public's trust and promote public participation.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.095
metaresearch head score (Gemma)0.069
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch, Research integrity
Consensus categoriesMetaresearch
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: none
GenreCandidate signal: Empirical · Consensus signal: none
Teacher disagreement score0.759
Threshold uncertainty score0.990

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0950.069
Meta-epidemiology (narrow)0.0000.000
Meta-epidemiology (broad)0.0010.000
Bibliometrics0.0010.003
Science and technology studies0.0010.001
Scholarly communication0.0000.000
Open science0.0000.000
Research integrity0.0010.012
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.871
GPT teacher head0.676
Teacher spread0.196 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; both teacher heads agree on what is shown here.

Study designNot applicable
Domainnot available
GenreEmpirical

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations2
Published2024
Admission routes3
Has abstractyes

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