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Record W4399327478 · doi:10.1542/peds.2024-065799

Developments in the Design, Conduct, and Reporting of Child Health Trials

2024· review· en· W4399327478 on OpenAlexafffund
Ami Baba, Alex Aregbesola, Patrina Caldwell, Sarah A. Elliott, Ellen B. M. Elsman, Ricardo M. Fernandes, Lisa Hartling, Anna Heath, Lauren E. Kelly, Jennifer Preston, Adrian Sammy, James Webbe, Katrina Williams, Kerry Woolfall, Terry P. Klassen, Martin Offringa

Bibliographic record

VenuePEDIATRICS · 2024
Typereview
Languageen
FieldMedicine
TopicChildhood Cancer Survivors' Quality of Life
Canadian institutionsUniversity of AlbertaUniversity of ManitobaChildren's Hospital Research Institute of ManitobaInstitute for Clinical Evaluative SciencesUniversity of TorontoSickKids FoundationPublic Health OntarioHospital for Sick Children
FundersNatural Sciences and Engineering Research Council of Canada
KeywordsMedicineClinical trialContext (archaeology)Research designChild healthClinical study designSample size determinationMEDLINEMedical educationFamily medicinePathology

Abstract

fetched live from OpenAlex

To identify priority areas to improve the design, conduct, and reporting of pediatric clinical trials, the international expert network, Standards for Research (StaR) in Child Health, was assembled and published the first 6 Standards in Pediatrics in 2012. After a recent review summarizing the 247 publications by StaR Child Health authors that highlight research practices that add value and reduce research "waste," the current review assesses the progress in key child health trial methods areas: consent and recruitment, containing risk of bias, roles of data monitoring committees, appropriate sample size calculations, outcome selection and measurement, and age groups for pediatric trials. Although meaningful change has occurred within the child health research ecosystem, measurable progress is still disappointingly slow. In this context, we identify and review emerging trends that will advance the agenda of increased clinical usefulness of pediatric trials, including patient and public engagement, Bayesian statistical approaches, adaptive designs, and platform trials. We explore how implementation science approaches could be applied to effect measurable improvements in the design, conducted, and reporting of child health research.

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame machine prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. The Gemma side is a direct model label for every work in the frame, read from the title-only record. The Codex side is a classifier learned from the 10,348 direct Codex labels and calibrated to design-weighted sample rates; fields without enough sample support carry no Codex call. Candidate is the union of the two sides; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels.

metaresearch head score (Codex)0.604
metaresearch head score (Gemma)0.742
Version: metacan-v3-hybrid-931329e0061cValidation status: machine_predicted_unvalidated
Candidate categoriesMetaresearch
Consensus categoriesMetaresearch
DomainCandidate signal: Reporting · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: none
GenreCandidate signal: Review · Consensus signal: Review
Teacher disagreement score0.396
Threshold uncertainty score0.488

Distilled classifier scores by category (both heads)

CategoryCodexGemma
Metaresearch0.6040.742
Meta-epidemiology (narrow)0.0020.003
Meta-epidemiology (broad)0.0060.007
Bibliometrics0.0100.016
Science and technology studies0.0020.011
Scholarly communication0.0160.011
Open science0.0100.008
Research integrity0.0070.020
Insufficient payload (model declined to judge)0.0040.002

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.468
GPT teacher head0.512
Teacher spread0.044 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; the direct Gemma label and the distilled Codex classifier agree on what is shown here.

Study designNot applicable
DomainReporting
GenreReview

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations12
Published2024
Admission routes2
Has abstractyes

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Same venuePEDIATRICSSame topicChildhood Cancer Survivors' Quality of LifeFrench-language works237,207