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Record W4401079780 · doi:10.1177/14713012241265268

Book Review: ‘Dignity for Deeply forgetful people: How caregivers can meet the challenges of Alzheimer’s Disease by Stephen Post’ PostStephen G.. ‘Dignity for Deeply forgetful people: How caregivers can meet the challenges of Alzheimer’s Disease by Stephen Post’. Baltimore: Johns Hopkins University Press, 2021, p. 268. ISBN: 9781421442501. $26.95

2024· article· en· W4401079780 on OpenAlexaff
Lily Haopu Ren, Lillian Hung

Bibliographic record

VenueDementia · 2024
Typearticle
Languageen
FieldMedicine
TopicPatient Dignity and Privacy
Canadian institutionsUniversity of British Columbia
Fundersnot available
KeywordsDignityDementiaDiseaseGerontologyPsychologyMedicinePolitical scienceLawPathology

Abstract

fetched live from OpenAlex

In his book of Dignity for Deeply forgetful people: How caregivers can meet the challenges of Alzheimer's Disease, Post offers an insightful, comprehensive and richly detailed discussion, driven by the core belief that individuals living with dementia deserve dignity, and that their caregivers are of immense value.Reflecting on elements such as compassion, respect, equity and interdependence, Post wrote key topics related to the everyday lives of people living with dementia and their caregivers.Post starts the book with a critical reflection on the dominant hypercognitive values in Western societies, which diminish the value of people living with dementiawhom he terms "the deeply forgetful people".Then, he presents a rationale and approaches designed to instill hope in caregivers to of people living with Alzheimer's Disease.In subsequent chapters, Post delves into crucial topics such as Pre-emptive Physician-Assisted Suicide (PPAS), ethics consideration, self-identity, and the respect for preferences in healthcare and research.For readers, especially informal caregivers, this book offers profound insights into the wide spectrum of care for people living with dementia and selfcare for caregivers themselves.With a focus on dignity for people living with Alzheimer's Disease, Post addresses key questions surrounding self-identity for people with advanced dementia, hope and resilience-building in caregivers.For instance, questions like "Is grandma still there?"and "How can caregivers maintain hope?" are explored with openness, suggesting that caregivers remain attuned to the presence of their loved ones and explore "new aspects to be discovered".This book is also helpful for staff in institutional care settings, community workers, researchers, leaders, and decision-makers in gerontology.Through compelling stories, Post presents the complexity and positivity in caregiving for people living with dementia from different culture, ethnicity, religion, life experiences and socioeconomic status.These narratives provide theoretical and ethical guidance for practice, research, teaching, learning and policymaking, aimed at uplifting the dignity of people living with Alzheimer's Disease and their caregivers.In Chapter 7, Post tackles the question "Is grandma still there?"He answers it with open-mindedness, grounded in attentive listening to stories of thousands of families and drawing from multidisciplinary

Fetched live from OpenAlex and de-inverted. Abstracts are not stored in this database: the inverted indexes are 8.6 GB of the frame’s 9.3 GB of text, and the host has 13 GB free.

How this classification was reachedexpand

Full frame distilled prediction

Teacher imitation

Not calibrated prevalence, not ground truth. Human validation pending. Learned from the 10,348 direct Codex labels and 10,348 direct Gemma labels. Candidate is the union of thresholded teacher heads; consensus is their intersection. These outputs are machine_predicted_unvalidated and are not human labels or direct frontier model labels.

metaresearch head score (Codex)0.001
metaresearch head score (Gemma)0.001
Version: codex-gemma-dda1882f352aValidation status: machine_predicted_unvalidated
Candidate categoriesMeta-epidemiology (narrow)
Consensus categoriesMeta-epidemiology (narrow)
DomainCandidate signal: none · Consensus signal: none
Study designCandidate signal: Not applicable · Consensus signal: Not applicable
GenreCandidate signal: Review · Consensus signal: none
Teacher disagreement score0.725
Threshold uncertainty score1.000

Codex and Gemma teacher scores by category

CategoryCodexGemma
Metaresearch0.0010.001
Meta-epidemiology (narrow)0.0010.001
Meta-epidemiology (broad)0.0020.002
Bibliometrics0.0000.001
Science and technology studies0.0010.001
Scholarly communication0.0000.001
Open science0.0020.001
Research integrity0.0000.001
Insufficient payload (model declined to judge)0.0000.000

Machine scores (provisional)

The two teacher heads of the student model, read on this work. A score orders the frame for review; it never asserts a category, and the validation status ships verbatim with every row.

Baseline scores from an immature model (maturity gate not passed, 7 training rounds). Scores rank; they never assert a category.

Opus teacher head0.029
GPT teacher head0.257
Teacher spread0.227 · how far apart the two teachers sit on this one work
Validation statusscore_only:v0-immature-baseline · verbatim from the scoring run: score_only means the number may rank works, and no category label ships from it

Classification

machine, unvalidated

Machine predicted; both teacher heads agree on what is shown here.

Study designNot applicable
Domainnot available
GenreReview

How this classification was reached, model by model and score by score, is at the end of the page under "How this classification was reached".

Quick stats

Citations0
Published2024
Admission routes1
Has abstractyes

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